Category Archives: Health

Recapping My 2016 (or Almost Doing All That I Wanted To)

I can’t believe that it’s the end of the year! It’s so true that the year flies by and that it seems like it wasn’t that long ago that I was writing what my goals were going to be for 2016. My year didn’t totally go the way I expected (both in good and bad ways), but I’m happy to say that I almost got all the goals I set for the year accomplished.

My first goal for 2016 was to do 180 workouts at Orangetheory. Sadly, this one wasn’t a goal that I accomplished. I will have one more workout for the year tomorrow, and that will bring my total for the year to 177 workouts. I know that 177 workouts for the year is still impressive and better than I did last year, but I really wanted to reach my goal. I had some setbacks that I wasn’t expecting, so that contributed to missing some of the workouts that I thoughts I’d be able to do. It’s not the end of the world that I didn’t hit this goal, and I’m trying to remember that the quality of the workouts that I did this year were so much better than last year.

I was lifting heavier weights than I ever have before. My form on the bodyweight exercises is significantly better. And most importantly I started to run this year! I never thought that was going to happen for me this year and I’m so happy that my coaches pushed me to do it. I still have so much progress to do on my running, but the amount of progress that I’ve had this year already has been incredible!

And that leads me to my next goal I had for 2016 which was to have a PR on my 5K. And because of my running, my most recent 5K was an amazing PR for me! Even with all the running training I had been doing, I had no clue that I could do that fast of a race! I accomplished so many goals I had for my 5K timing with that one race and now I have to figure out what new goals I have for 2017 for my races. My next race should be before my liver surgery and the second one will be after. And I have no clue how the surgery will affect my training so I need to be cautious with the goals I set.

The next goal I set for 2016 was regarding money. I wanted to budget better, reduce my debt, and possibly start saving money. While things haven’t been as great as they could have been with money, I think I’ve been doing a lot better than I have before. My budgeting is going better and part of that budgeting is budgeting money each month to go into saving money for big things like when I have to do car repairs or my new computer. I’ve also brought my debt down this year. And even though it isn’t as low as I hoped it would be, getting it down is tough so any reduction is an accomplishment.

I also set a goal to travel more and go on more adventures with my friends. I really didn’t do a ton of traveling this year, but the trips I did take were really fun. I didn’t get to do the trip with my sister-in-law like we had planned, but we are working on a trip idea for 2017 so at least trip planning happened this year. But I totally did do more adventures this year with my friends. I’ve been going to shows quite a bit and those still make me so happy. I got to go back to Magic Castle and had so much fun with my friends being silly there. And of course I had a ton of outings to Disneyland and Universal Studios.

The one goal that I didn’t really even get close to doing is being in another acting class this year. I debated doing the next level of improv at UCB, but I decided against it for a couple of reasons. I looked into a few other acting classes and I’ve found a couple that do interest me, but there was an issue with scheduling. And with knowing that I have surgery coming up in the spring, I’m very hesitant to try to get a class planned for the new year. I know I need to get back into a class, and I’m a bit upset with myself that I didn’t do any action with this during 2016. But I’m ok with not doing it because I didn’t want to waste money on a class I didn’t really care to do.

And my final goal for 2016 was to be in recovery or on my way into recovery from my eating disorder. I’m not in recovery at all, but I’m working toward it and the steps I’ve made this year have been significant. I think I’ve made more progress this year than I have in the past few years combined. I’m working on recovery every day which is something that I haven’t done before. I’ve had fewer binge episodes a week than before and the binges I have had were not as severe as they were in the past. I still have a lot of work to do, but it’s getting there.

Considering all the craziness of my life this past year, I’m pretty happy with how my goals went for the year. I know that things could have been better, but they also could have been so much worse. And I know that 2017 is just going to be even better!

My goals post for 2017 will be next week (along with the post with my word for 2017). I hope you all have an amazing New Year’s Eve and New Year’s Day! Please be responsible and call for a cab/Uber/Lyft if you are out drinking so you get home safely. And here’s to all of us having an incredible start to 2017!

Getting Out Of A Food Funk (or I Need To Get Back To My Good Work)

I had been doing really great with food for the past few months. A lot of it started when I spent the day in the hospital and then was on a restricted diet for a bit while doctors figured out what was wrong with my liver. I lost quite a bit of weight during that time and I was binge free for a few weeks. I know that not having binges and restricted diet obviously helped with the weight loss, but I had also been keeping off the weight so I figured it was also the hard work I had been putting into things.

I’m still having trouble accepting compliments about the weight loss. It does still feel unearned to me in a way because the majority of what I lost was while I was sick so I didn’t feel like I did anything to earn it. I’m finally able to just say “thanks” when someone says I look like I’ve lost a lot of weight and not explain as much that it was because I was sick. But when people ask me what I did to lose the weight, then I end up telling them about being sick and the restricted diet I was on for a while.

There have been a lot of splurge meals lately. I need to be able to enjoy food and not stress about it, so I do allow splurges. The key is trying to get back on track with the next meal and not waiting for the next day, next week, next month to do so. I had been doing ok with that as well and I have been trying to plan my food around the splurge meals to try to eat lightly before and after the big meals. I think I’m a lot better at planning for before the meal than after, so I try to make those bigger meals dinners.

But this past week, I’ve been struggling a lot. It happened the day after my appointment with my therapist (ironic timing). I’ve had more binges in that week than I have had in a week in a while. The only good thing is that the binges are significantly fewer calories than they have been before. A lot of the binges are 1/3 or 1/4 of the calories of the old ones (yes, I track calories during binges when I can). I think that while this is a set back, it is progress at the same time and showing that my relationship with food is getting better. Obviously no binges would be better, but binges that are only 25% as strong as the old ones were is good.

From all the “bad” days I’ve had this past week, I’m up about 5 pounds. It’s not that much (and as a friend pointed out to me this gain could also be related to hormones), so the fact that I’m aware now is hopefully a sign that it will not continue to go up much and I can get it back down to where it was and then start making progress on my weight loss again. While my focus of getting my body ready for my liver surgery isn’t weight loss focuses, there is a number that I’d love to get to on the scale before I have surgery.

I know that being aware of these problems is a big step. In the past, I know that I have gone months before I realized that I had a problem. I’ve gained 40, 50, 60 pounds back after a weight loss before I took a second and realized that something wasn’t right. My binges were more of trances and I didn’t get out of the trance as quickly so I wouldn’t know I needed to stop. Awareness is a skill that I’m working on so I’m happy that there is a sign that it’s starting to work in my life. I just need to make that skill stronger and I don’t know how to do that outside of actual practice (which I don’t love because that means I can only work it when I have a binge episode).

I don’t want to blame the holidays for the increase in binges, but I know that having a busy social life can be a part of it. Things will be calming down for me in the next week or so, and hopefully that does help a bit. But on the other side, I know that being bored and having no plans can lead to binges as well so I need to find the perfect balance of busy and bored. It’s a balance that will be tough to find, but clearly I’m working my way toward that since these bad episodes are significantly better than they have been for me in the past.

A Good Therapy Check In (or Focus On The Good)

I had an appointment with my therapist this week. Since I’m only seeing him every 6 months now, there have been a lot of things that I figured we would discuss. Obviously, we would be discussing my recovery but I knew there would be so much more to talk about in the appointment.

When I got called back, my therapist asked how I had been. My first response was to ask if he had seen my regular medical record because if he hadn’t there was a lot to update him on. He mentioned that he had seen some of it, but asked me to fill him in. So I gave him the story about the tumors in my liver and all of that stuff. It’s a lot to take in and I’m sure it sounds super overwhelming for someone who hasn’t heard it before. But to me, it’s not a huge deal and I can almost tell the entire story in a single breath. I’m wondering if it will seem like a bigger deal to me the closer to surgery I get, but for now I’m not thinking too much about it.

My therapist asked me how I was feeling about the tumors and if I was letting that affect my recovery, and I let him know that I was working on focusing on the positives as much as possible. Negative thinking isn’t going to change my situation, so I don’t see the point in wasting time on doing that. I’m going to have surgery and I’m trying to plan on making it as positive of an experience as possible (including telling all my friends that they have to come visit me when I’m in the hospital).

We also discussed the issues that I’m having right now with food. I’m worried a lot of the issues are related to hormones (or lack of synthetic hormones) and I just need to learn how to deal with this because this will be my reality for the rest of my life. I’m having more bad days than I would like right now, but I know that this is an adjustment period and it will get better. It’s unfortunate I have to deal with it, but again, thinking negatively isn’t going to help me at all.

My Vyvanse dosage was also discussed at the appointment. I’m getting close to having been on the medication for 2 years and I think we are finally at a good dose for me. I think it could work better if I was on a slightly higher dose, but I want to wait a bit to see if that is how I feel in another 6 months. I don’t want to keep increasing the dosage because there is a limit to how high the dose can be and I don’t want to keep increasing it until I get to that point. I’d rather be on the conservative side of things and increase them later.

We really didn’t have a ton to go over in the appointment. I am doing pretty great even though sometimes I don’t feel like that. My therapist feels that I’ve shown a ton of improvement over the time that I’ve been seeing him and he thinks that things are just going to get better and better. He said a lot of that has to do with me taking responsibility for bettering myself and not trying to depend on medication only. The fact that I’ve been doing monthly challenges are impressive to him and I think he’s still surprised that I’ve been keeping up with my happiness checklist.

But the thing that my therapist feels has been the most beneficial to my recovery so far has been my positive attitude. I rarely put myself in a victim mentality and I believe in the power of positive thought. Even though there isn’t any scientific evidence to prove this, positive thinking can do wonders for a person. You can do things that others may have thought to be impossible. I’m hoping that positive thinking will help my liver tumors shrink before my next MRI so that my surgery will be easier than expected. And in a few months I will hopefully see the results from that.

The positive thinking to get into recovery may take longer, but my therapist and I agree that those results will come for me one day. I just have to be patient and willing to wait it out until things get better. I’m happy to do that because I know it is in my future, but I do wish the timeline would speed up a bit!

The ending point of my therapy appointment was that I just need to continue doing what I’m doing. Thinking positively and looking at the good in situations is working for me and it will continue to work for me as long as I keep working at it. My next appointment with my therapist will be in 6 months, so that should be after my liver surgery. I hope that I will be able to update him that the positive thinking did a great job with getting my body ready for surgery!

And after all that discussion about positivity and good out there, I walked out of my appointment to see one of the most beautiful sunsets I had seen in a long time.

I’m taking that as a sign that good things are coming my way!

Hitting A New PR (or Forgetting To Take Things Easy)

I wasn’t sure how this past week of workouts would go. I knew that Monday would be fine, but since I was getting my IUD in on Tuesday I thought there would be a chance that was going to be my only workout. I was hopeful that I would be able to do my 3 workouts, but I was also realistic. So I figured even if I only did my Monday workout or only made it through 10 minutes of the other workouts that it would be good enough. But because I’m stubborn, of course I didn’t take it easy.

Monday’s workout was the last challenge for the 12 days of fitness. And for day 12 we had a 12 minute distance challenge. Since I knew my mile PR was 13:39, I just wanted to be as close to a mile as possible. Some of my friends were telling me that I could probably do a mile in 12 minutes, but I didn’t believe them. But then I realized I wanted to prove to myself that I could do it.

For the 12 minutes I did 1 minute of running at 6 mph, 1 minute of running at 5.5 mph, and 1 minute of walking at 3.5 mph. While I’ve done 2 minutes of running with my intervals before, it has never been that fast. There were plenty of times that I thought that I couldn’t do it and by some change I realized I had made it to my walking minute. I was so tired and so out of breath, but when I saw the 1 mile come up on the treadmill screen at 11:48, I’m so glad I did it! Taking 2 minutes off of my mile is massive progress and I shocked myself so much! But since it was a 12 minute challenge, I couldn’t stop the treadmill then so my picture is of my 12 minutes being a little more than a mile.

After that challenge, we switched to the floor (so the other group could do their 12 minute challenge) and it was a very intense floor plan. We had burpees, abs, lunges, squats, and shoulder work and all of them were between 10-60 reps. I made it through most of the floor work and then it was time to get back to the treadmill. I wanted to run on the treadmill, but I was so tired from the challenge so I did walking for all of the segments.

That would have been enough for a workout, but it wasn’t done. After that last treadmill time, we had to do a 1200 meter row. That is such a long row, and it was even harder considering all the other work I had already done. I wanted to be able to do it in under 6 minutes, and I’m happy to have done it in 5:57.

Wednesday’s class was the one I was most nervous for. I wasn’t in too much pain, but my stomach was dealing with some dull cramps and things were feeling a bit off. I figured I’d do the best I could and that would be that. It was an endurance class where we switched between blocks and I think that switching helped make things easier on me. I was able to do my regular 1 minute intervals for the long 3 minute push paces. And while I tried to run the entire 2 minute and 90 second push paces, my body just couldn’t do it. I had to cut them short, but I did run for the majority of the time.

I stuck with slower running speeds for everything that day. Even my all out paces were at a speed that sometimes is more of a push pace for me. It wasn’t that I was in pain, but things were feeling weird and I think I was psyching myself out and afraid that I was going to hurt myself somehow. There’s nothing wrong with taking it easy, but I was caught in-between feeling fine and wanting to do things like normal and being scared that I was somehow ignoring my body and going to hurt myself.

On the floor work, we had rowing each block. The first block was 300 meters (I did them in 1:20 and 1:14) and the second block was 600 meters (I did that in 2:42). All of those row times are pretty awesome for me, but rowing was tough. There was something about sitting and bending that way that made my stomach cramp up more. The pain was never that bad (it felt more like a strong pressure in my stomach), so I figured it wasn’t bad to push myself. I did have a tough time with the squats and ab work, so I did modified stuff for those. But considering that this workout was the one that I was going to take it easy or skip, I clearly didn’t follow that plan.

Friday was a power day with a run/row. I was still feeling  some cramps and uncomfortableness, but still nothing that bad. I was still taking Motrin for the pain, but Friday I probably could have skipped it (I just didn’t want to risk hurting a lot during the workout). For the run/row, we had 3 row segments for each distance. For the first distance, we had to do .2 miles 3 times with different rows in between (200, 150, and 100 meters).

I was able to run the full .2 miles each time. I was a pretty long run for me (close to 3 minutes) and it wasn’t easy. I still had that odd feeling happening but I wanted to push through it. I think the exercise helped the pain go away faster so I wanted to keep going. I took the rows easy because it was still hurting a bit to sit down and row. I didn’t pay attention to how long it took me to do each of them because it didn’t really matter to me at that point. I did make it to the .15 miles block (there was also a .1 miles block) and got 2 sets of that done before it was time to switch to the floor.

The floor work was focused on arm work which was good for me. I wasn’t dealing with any weird pain while doing the arm work so I was able to life 20 pound weights for all of the work. We did also have some plank work which was a bit tougher. I was having some weird knee pain so I had to do my planks on my toes and that made things even tougher. I know my plank form was sloppy, but again I just focused on making it through and getting it done.

Overall, I would consider my workout week a huge success. It would be a success even if I didn’t have my IUD to deal with so that makes things even better! I know that my stubbornness can be bad at times, but having it to push me through any uncomfortableness to keep going with my workouts is a good thing. I needed the workouts since my food hasn’t been great and I’m glad that even while one thing is not going so great that the other is going even better!

Dealing With Hormones (or Trying To Work With My Eating Disorder)

Like I mentioned yesterday, I had to stop taking my birth control pills because of my tumors. I’m still having a bit of pain from the IUD, but I know that will be ending soon and I’m so grateful that I’ve had an easier time than most of my friends. But as soon as I stopped taking my pills, my body was no longer on a steady level of hormones. And I’ve noticed that it is causing issues that I wasn’t expecting.

The first few days off of the pill were pretty easy. I was expecting things to be really horrible since I had been on the pill for 15 years. I know that a lot of people have pain and weird issues when you aren’t on regular hormones, but for a bit of time it seemed like I might have escaped that issue (I’m guessing all pain I’m feeling now is from the IUD and not stopping the pill). I’m still doing pretty ok with my hormones not being regulated and getting through the mood swings I haven’t experienced since I was a teenager, but I’ve noticed that it’s been causing problems with my eating disorder.

I have no clue if this is because my hormones are out of whack, I’m going through normal hormone fluctuations, or what it could be but my food situation hasn’t been great for the past 2 weeks. I’m having very odd cravings and I’m not able to ignore them. When I tried to ignore them, that brought on a binge eating episode so I’m trying to figure out what to do to handle the cravings but not let them get overwhelming. But they do get overwhelming from time to time and I’ve had to realize that maybe I have to accept this as a temporary situation.

A lot of the time, I can eat things that aren’t too horrible for me to handle the cravings. Lately, it’s been alternating between salty things (I eat saltines) or slightly sweet things (Cliff Bars do the trick). But those things both cause my weight to go up if I eat too much of them. And when I’m craving something, it’s so similar to a binge episode that I have trouble stopping it. I haven’t found alternatives that satisfy the cravings that aren’t as bad but I’m working on it. And I’m aware that these cravings can change over time so maybe in a few weeks I’ll be craving fruit or crunchy things like veggies.

It also doesn’t help that the day after getting my IUD, my scale went up 8 pounds. I know that it isn’t “real” weight but it was still distressing. The water weight will go down eventually, but when I’ve worked so hard to not gain weight it can be very upsetting to see the number higher than it should be. And I know that my body is extremely slow in losing water weight so it may take a lot longer than I would like. In the past, it would be a reason for me to say screw it and have a big binge episode. But I’m not doing that this time and hoping that my body settles down soon.

Since stopping my birth control pills and getting my IUD were so close together, it’s tough to know if things are caused by one or the other. I’ve been told it can take 3 months or so for your body to regulate with the IUD (and technically even longer to regulate after being on hormonal birth control pills). While this is the time that I wanted to work on my health to prepare for liver surgery in the spring, those months may just be trying to stay right where I am and getting through whatever my body has to go through to be normal again.

I have an appointment with my therapist next week, and I know this will be a lot of what I will be discussing with him. I’m hoping that he can give me some tips or guidance on how to deal with this and not have it delay the progress I’ve been making so far. I don’t know if he is able to see my full medical record, so I’m planning on filling him on everything with the tumors and all. Hopefully giving him the full picture of my physical health situation can help him help me with my mental health situation.

While I wish that I didn’t have the tumors and I was able to stop my birth control pills on my own timeline, this is probably a good thing. I’ve been on the pill for a very long time and while my time before it was pretty horrible with my hormones there’s a chance I’ve outgrown a lot of the issues I had before. Not having the hormones in my system could be a benefit for my eating disorder. It can be temporary that I have crazy hormone fluctuations but once things normalize I should be able to know when my binges may be more likely to happen. And then I can plan to try to prevent them. This is going to be a long haul journey, and while the beginning has been rocky I hope that in the end it ends up being a really great thing for me and my journey to recovery.

An IUD Experience (or I Wish I Knew It Could Be This Easy)

Warning for my readers (especially the guy readers): This post is about my experience getting an IUD. I’m not shy describing stuff so just know that if you read today’s post.

With the liver tumors, there isn’t much for me to do between now and my next MRI in the spring. I just have to hope that my body will decide the tumors should shrink so things will be easier. I don’t have to change pretty much anything in my life because of them with one exception. I had to stop taking my birth control pills.

I’ve been on the pill since I was 18 and it was weird to stop taking them. But knowing that the hormones in them were what caused the tumors (literally a one in a million complication) made it a non-negotiable thing for me to stop. Ironically, I had to stop hormonal birth control but right now pregnancy could be extremely dangerous. I needed something to make sure I won’t get pregnant before my surgery (even though that is not really a concern for me), and non-hormonal options are pretty limited. But since hormonal options will be out of the picture for me for the rest of my life, I figured now is the best time to figure out what I want to do.

I have a very open relationship with my family. It helps that my dad was an OB/GYN and there is no shame or embarrassment to discuss things with him or anyone in my family. And everyone in my family agreed that I should get an IUD. Several women in my family have them and love them.  And since there is a non-hormonal option (the copper Paragard), my OB/GYN agreed and scheduled me a time to come in and get one. While getting an IUD was something I thought about doing for a few years, I wasn’t too happy about having to get one. This wasn’t totally my choice, but I knew it was the best thing for me.

Of course, I reached out to all the friends and family I know who have an IUD to ask them about their experience. Mainly, I was terrified about the pain I might have with the insertion. I’ve read it can be very painful when you haven’t had a baby yet and I’m not a fan of pain. But since my OB/GYN knew how scared I was, she prescribed me some things to make it easier. I already have prescription motrin for my hip, but she also wrote a prescription for 1 dose of Valium to keep me calm and 2 doses of Codeine to help with the pain before and after.

Since I was going to be pretty loopy going to my appointment (I had never taken Valium before so I had no clue how I’d react), I had a friend who has an IUD drive me. I knew she’d be able to help keep me calm and would be a good person to have with me after if I was in a lot of pain. So this week, I had my appointment and I wanted to share my experience because I think it is important for people to know what it is like.

I took the painkillers about an hour before my appointment and felt fine with them. I’ve taken those painkiller before and knew I wouldn’t have any weird reactions. But when I took the Valium, I got loopy right away. I was shocked how fast it got into my system but was grateful that it did calm me down significantly. But when my friend picked me up, I knew I was acting weird. My brain and mouth felt disconnected and I couldn’t get out what I wanted to say. I was slurring (my friend said I sounded drunk or someone who was in the middle of dental work) and I couldn’t think of words that I wanted to use. I don’t like being out of control like that, but I knew it was for the best.

I was still nervous when I got to the appointment, but fortunately my OB/GYN is a family friend and was willing to work on making this as easy as possible. After doing a pregnancy test (they are required to do it even though I knew there was no risk of me being pregnant), my OB/GYN decided that the best option would be for me to get a shot of lidocaine. Most OB/GYNs don’t do this because getting a shot in your cervix can be very painful and can be worse than the IUD insertion. But for me, I didn’t really feel the shots. I didn’t know she did the first one and for the second one I didn’t feel pain but did feel a slow mild shock going up one side of my abdomen (it was on the side that the shot was going in on my cervix).

After the shot, we had to wait about 5 minutes for it to take effect, so we were just chatting and catching up on random things. I also told my doctor that I was totally going to be blogging about this so she took the IUD out of the box so I could get a picture of it before it went inside me.

You can see that the IUD is pretty small. The device it is in is the thing that is used to put it in your uterus (the arms get folded down before insertion, but I wanted the picture of it before it got folded down). Even though I knew IUDs are small, seeing it before the insertion did make me feel better. I don’t know why I needed more reassurance, but knowing that it was tiny and the device to insert it is smaller than a straw was good.

After I was numb, the next step was to measure my uterus so my doctor knew how far to insert the IUD. They used a device to hold my cervix open, but I didn’t feel it at all. I thought I might feel some pain or pressure, but when my doctor told me it was on there I was shocked because I had no idea. When she used the sounding device to measure my cervix, I felt that a bit. But I only felt it when it hit the top of my uterus and it was a little pinch (less than a shot or needle stick for an IV). I jumped a bit when that happened, but again it was significantly less than I thought it would be.

Finally, it was time to get my IUD. The IUD is loaded up in the insertion device and then it was placed in my uterus. I didn’t feel it at first, but as my doctor was placing it and getting the arms to pop out that was a weird sensation. I don’t know how to describe it. It wasn’t painful but it was odd. It almost felt like something was trying to pull my insides out of my body. It lasted maybe 3 seconds and then it was done. Then my doctor trimmed the strings of the IUD (I felt nothing) and the worst was over.

The final step was having an ultrasound to make sure the placement looked good. My doctor turned the screen so I could look at it too and she pointed out where the IUD is and where my uterus and ovaries are. It’s not easy to see in the image, but the long straight line in the center is the IUD.

The placement looked good to my doctor and we were done! If you don’t count the 5 minutes we waited for the lidocaine to take effect, the entire thing was probably less than 3 minutes. And I’m aware I had more painkillers than most people and I got the lidocaine shot too, but this entire process was pretty close to painless. Getting an IV for my liver MRIs were more painful than this process.

I have to go back to my OB/GYN in 6 weeks to have the placement checked again, but if everything looks good I’m protected against pregnancy for 10 years! There are no hormones in the copper IUD so it won’t affect the tumors at all. And if I want to have kids within the next decade, it’s pretty easy to have this removed.

I know that most people have much more difficult experiences than what I had. Even after the lidocaine wore off, I wasn’t in much pain. I have a small cramp in my lower abdomen, but it’s a pretty dull pain. I am still taking motrin as a precaution and after getting the IUD in I used a heating pad that night. But this was not unbearable at all. I know this could get worse later, but I’m not too worried about that. The thing that scared me the most was the insertion and I was laughing after it was done about how easy it was. If I had known that before, I probably would have gotten this years ago.

While I still wished that this was more of my choice and not something that was my only option, I’m glad I did it. I’m glad that I was able to manage the pain with the options I was given and that the experience was easy. All of the stress and worry I had before was so much worse than anything I experienced in the appointment.

I want to thank everyone who shared their stories of getting an IUD with me when I reached out for advice. You were all right that it wasn’t bad and that I was worrying more about it than I needed to. And if you are considering an IUD, know that while it can be painful that pain is usually over pretty quick. And maybe you will be lucky like I was and have an almost pain-free experience. Feel free to reach out to me through the comments or the contact form if you have questions or want to contact me about this. Obviously I’m an open book and happy to share whatever I can with you all.

Health and Not Weight Loss (or My Current Game Plan)

Since getting sick, I’ve lost a pretty significant amount of weight. This is a good thing since I’ve been working on losing weight and I’m pleasantly surprised that the weight has stayed off. Typically when I lose weight quickly like I did, it comes back just as quickly as it came off. But this time has been different and I’m starting to be ok with that and not in constant fear that the scale is going to jump up like crazy the next day.

It does freak me out that many people are commenting on my weight loss. I’m hearing it from so many people lately. I know it’s a good thing, but I still feel like I didn’t earn it. But I’m trying to just accept that now I’ve been keeping the weight off even though I’m not sick anymore and focusing on that.

While I am trying to lose weight, I’ve decided that it isn’t my focus right now. I’m basically preparing my body for surgery now and I take that very seriously. When I was preparing to have my hip surgery, I did the UCLA RFO diet to lose weight. Being at a low weight was good for that surgery since it was helping to make my joints have less weight on them while I was recovering. But I still hate that I lost and gained that weight so quickly. But that was the best option at the time to get my body ready for surgery.

I’m really working on the physical part of surgery preparation. And yes, that does involve working on weight loss but that is more of an after thought for me. I know that this surgery will be tough on my core, so I want to get my core as strong as I can. After surgery, I won’t be able to do any core or abdominal work for a while as I heal. So being extra strong there will help with that. Being flexible will help too since I know I won’t be able to bend like normal for a bit of time too, so I’m working on stretching a lot and making sure I won’t have a hard time when I’m not able to move around as much.

I’m doing this by pushing myself even more at Orangetheory. I know I won’t be able to work out like normal right after surgery, so I want to make as much progress as I can now so the setback won’t be as bad. I’m looking into more workout stuff I can do at home that will help get my body ready for this. And I’m working harder than ever on my eating disorder recovery because that will help with the weight loss aspect of preparation. I know that the smaller I am the easier the surgery will be. The surgeon will have an easier time getting the tumors out and my scars should be smaller. Those are good things to focus on when I’m having a bad moment.

And there is a lot of mental preparation I’m doing to get ready to have surgery next year. Right now, the only thing I need to focus on is hoping the tumors get smaller. The smaller the tumors are, the less of my liver that they will have to remove (which means less liver I need to regenerate). My mom is a big believer of how much thinking positively can do to help your body. When she was dealing with chemo and radiation, she spent time each day imagining that little Pac-Men (that’s what she called them) were going to her tumor and eating it away.

I can’t see Pac-Men in my liver working on my tumor, but I have my own thing. For some reason, when I think of my tumor getting smaller, I think of the Dwarfs in Snow White with their pickaxes. So I spend time each day thinking of them using their pickaxes and busting up the tumor. I know that the tumor won’t go away completely from this positive thinking, but I’d love to see them significantly smaller when I have my next MRI in April.

I’m doing whatever I can to make this surgery successful. I’m grateful that I have time to get my body and mind prepared as much as possible. I know that even if I’m not as skinny as I was during my hip surgery, that doesn’t mean that I can’t be healthier than how I was back then. Health is the focus because that is what will control how successful the surgery is and how easy my recovery will be after.

Tumor Updates (or I’ve Got A Plan For My Liver)

It’s been an interesting adventure so far with my liver. In the past month, I’ve gone from thinking my liver was fine to thinking I had a cyst to finding out I had a tumor. Since I had no symptoms of the tumor, I’ll admit I was pretty shocked to find out it existed. But I was set up with a great medical team and my doctor has been very persistent in trying to figure this all out.

Before Thanksgiving, I went in for another MRI. This time, it was a different type of dye they used so they could figure out what type of tumor was in my liver. I knew I’d be meeting with my liver surgeon the Monday after Thanksgiving so I assumed that I would find out answers then. But on Wednesday before Thanksgiving, I got a call from my OB/GYN (who was trained by my dad and has known my family for a while). She told me she had been following my medical records and saw that there was a report about my last MRI.

They officially declared that my tumor is an adenoma. This is the type of tumor that is a rare side effect from being on hormonal birth control. So my OB/GYN called me to tell me to stop taking my birth control pill because we didn’t want the tumor to get any bigger. She also told me on the call that they actually found out I have 3 tumors in my liver (the big one plus 2 small ones). She was able to send me the MRI report so my family and I could read it and she also talked to my dad to fill him in. We learned a lot by reading the MRI report (thankfully I have so many medical people in my family), but we were all still curious what the liver surgeon would say.

When I finally met with him on Monday, he pretty much agreed with everything we already heard. Yes, I have 3 tumors and they are all adenomas. He was happy to hear that I had already stopped my birth control and he explained my options. I could choose to not have the tumors out, but there is a very small chance that one day they could become cancerous and a larger chance that they could rupture and cause internal bleeding. Also, I could not get pregnant while the tumors are in there (pregnancy makes the tumors bigger and more likely to rupture). Or I could choose to get them out and have liver surgery that will take out 2 of the tumors (one isn’t in a spot where they could remove it right now) and then deal with recovery from surgery.

tumor

That large circle with the line through it is the tumor. It’s pretty large (almost the size of an iPhone) and covers a good portion of my left liver. The other tumors aren’t seen in this image but one is below the large tumor and the other is more toward the middle of my liver.

To me, it’s no question. I’m going to have surgery to get the tumors out. Even though the risk of the tumors becoming cancerous is very very small, I don’t want that risk (the chance of me getting these tumors to begin with was very small so I’m not a fan of odds right now). Also, I do hope that one day I will be married and want to have kids so I need the tumors out to have a safe pregnancy in the future.

Fortunately, nothing needs to be rushed right now. I’m not at a very high risk of rupture for the tumors (although I have been told to be careful with any trauma to my abdomen) and I don’t plan on being pregnant anytime soon. I was able to make a plan with the liver surgeon that I’m happy with right now. I need to stay off the hormonal birth control so we can see if the tumors will shrink at all (and I’ll be getting a copper IUD very soon to make sure I don’t get pregnant). In the spring, I will be getting a new MRI to see if the tumors are smaller and then I’ll meet with the surgeon.

And sometime in late April or early May I will be having my liver surgery. They will take out those 2 tumors (and maybe if the tumors shrink they can take out all 3) plus about 25% of my liver. And since I already need to have my gallbladder out, they said they could probably do that in the same surgery! I’m happy to know that I can do 2 surgeries at once.

It’s not an easy surgery to recover from. This will be much more difficult than my hip surgery or my tonsils coming out. I’ll need to stay at the hospital for a few nights and will take some time to get back to normal. And even though my liver will grow back (it’s one of the few organs that can do that), that will also take time and may be a bit uncomfortable or painful for a few months.

Even with all the negatives that the surgery may bring, I feel very confident in my choice to have the tumors out. I understand that I don’t have to do it, but in my mind having the surgery is the only reasonable option. Unless something crazy happens, I probably won’t have any more liver updates until my next MRI in the spring, but I promise to keep you all updated. One thing I’ve learned while researching liver adenomas is that there aren’t a ton of stories out there like mine. So I want to share the journey in case someone else has the same situation to help them feel less freaked out by it all.

Thanksgiving Prep (or So Little Time)

Leading up to Thanksgiving, I knew there was a lot of stuff I had to get done and I was really trying to plan things out the best I could. Of course, things never work out the way you think they will. I’m just glad I got all my prep work done before I left last week!

The main part of my Thanksgiving prep was getting the food made that I knew I was bringing. I only was bringing 3 dishes with me, but when you have a tiny kitchen making 3 dishes can seem overwhelming! Especially when I don’t have multiples of the kitchen things I was using!

The first thing I made was banana bread. This has become a tradition over the past few years and I’m glad I’m able to make it to help out. It’s a pretty easy recipe to make and I happened to have some bananas that were overly ripe that I could use. I had almost all of the ingredients that I needed for the recipe at my house (except some of the dairy and the blueberries) and it was a quick thing to put together and get into the oven so I could make the 2 other things I needed to make.

The other dishes I was bringing were dips. I made the feta dip that is a tradition with the family (usually my mom makes it but it is now my thing to make). This is another easy thing to put together, but it is something that I usually don’t have the ingredients for in my house. But once you have everything you need, you just throw it all in the food processor and it is done! The other dip I made was a white bean dip that I found online. It was another really easy thing (just white beans, garlic, parsley, olive oil, and lemon) that was a food processor dip. The only complication I had was I only have one food processor bowl. So I made the feta dip, washed and dried the bowl, and made the other dip. Between the dips and the bread, I got everything done within about an hour.

thanksgiving-food

Packing was something else I tried to plan out, but it ended up being something that I was doing while I was working the day I was going to be driving to San Diego. My family now does casual Thanksgiving and that does make things easier with packing. But because I have lost a pretty significant amount of weight lately, I’ve been realizing that many of my clothes don’t fit anymore. So I grabbed all of the things I was thinking of packing and was trying them on between customers. I guess I should just feel lucky that my work is online chat and phones and my customers can’t see me!

Between packing and cooking, I felt like I had enough on my plate. But I also ended up having my liver MRI the night before driving to San Diego. I was at the hospital for a few hours getting it done so that was a bit of a time suck. The MRI itself wasn’t too horrible. Once the IV was in and I was in the machine, it was about 45 minutes. And at this hospital, you can listen to music while in the MRI tube. They had Pandora as an option and I requested the Broadway station. All the songs that played were things that I knew, but the best moment was when I heard my friend AJ singing on the “Heathers The Musical” soundtrack in-between 2 songs from “Hamilton”! That really made me happy and forget about all the stuff I had to do to prepare for San Diego the next morning.

And because all that craziness wasn’t enough leading up to San Diego, on Monday morning as I drove to my workout the power steering in my car died. I’ve never driven without power steering before and I knew that it was something that needed to be fixed before driving down. I took my car into the shop around 10am on Monday and discovered that the power steering in my car isn’t the standard one used so it would be tough to find a replacement part. They were hopeful that my car would be fixed by Friday, but that meant I wouldn’t have my car for Thanksgiving. Fortunately my mechanic offers free loaner cars so I got one of those and drove that to and from San Diego. As I’m writing this, my car still isn’t fixed. They got the replacement part in on Friday, but it’s still not fixing it. I’m hoping I’ll get my car back this week, but at least I have a loaner car to use so I don’t have to pay for a rental.

My Thanksgiving prep did end up being a bit stressful, but it all worked out in the end. I got everything done that I needed to (plus some things I wasn’t expecting) and I had an awesome Thanksgiving trip. But my Thanksgiving recap won’t be until tomorrow’s post!

Meeting A Surgeon (or Working On My Liver)

After I found out that there might be a cyst on my liver, there have been a couple of different medical tests I’ve had to do. I had to do another MRI with contrast and some more blood work (both things involved needles) so that the doctors could figure out what was going on. I knew that there was something wrong (I didn’t believe that the situation could just be one big mistake), but until this week I really didn’t know exactly what was happening. I just knew that something didn’t look normal but nothing looked so horrible that I had to rush to get tests done.

I tried to avoid looking things up online because if there was a cyst there are so many types of cysts that I don’t know what to look for. And if it wasn’t a cyst, I had no clue what it could be so trying to research things was pretty pointless. I figured that when I met with the surgeon I had to meet I could ask him all my questions and try to understand what was going on. I made a decent list of questions to ask him and went to my first consultation with this surgeon this past Monday.

The first thing that I learned was that I don’t have a cyst in my liver. I actually have a benign (non-cancerous) tumor in there. I know that the word tumor sounds bad, but this may actually be better than having a cyst in my liver. The tumor is both inside and on the outside of my liver and it’s pretty large (not as large as they thought, but still close to half the size of my liver). This is not an urgent situation and I’m not in any pain, so there’s no need for me to panic.

This tumor is likely one of two types of tumor. One type doesn’t have to be removed and is a relatively common type of benign liver tumor. The other type is a rare type of liver tumor that is almost only seen in women around my age who take birth control. The tumor is a side effect of the birth control hormones (but a very rare side effect) and it would need to be removed. Because the tumor doesn’t present like how either of those types of tumors look, I have to do some more medical testing. But I did get a good laugh out of the fact that my tumor is not typical since it seems like all my medical issues present as atypical and I’d expect nothing less from this.

The surgeon I met with was really amazing. He was fine answering all my crazy questions I had and let me take pictures of the MRI images so that I could show them to my family. And he was explaining as much as possible about the tumor to me. It’s tough to explain it when he’s not sure what type of tumor it is, but he did his best. I’m really happy that this is the surgeon that I randomly got paired with to work with on this. Some doctors don’t understand my need to understand things as detailed as I do, but he was almost happy to find out that I want to know things and make educated decisions.

While I was hoping that at this appointment I would get a proper diagnosis, plan, and find out if I need surgery; I’m ok with this just being the first step in whatever this journey ends up being. It’s going to either be something to monitor for the rest of my life or be a surgery sometime next year so I’m not in a rush. I want to make sure everything is understood before decisions are made and that’s what’s happening. I’m hoping I’ll have the additional testing (which will be another MRI and possibly one more test) in the next week so that I can have some better answers by Thanksgiving. That way I can discuss things with my parents in person (they help me make all major medical decisions since they worked in that field).

No matter what type of tumor this ends up being, I’m going to be fine. There is no reason anyone should worry about me. I’m not in any pain (my stomach pain had nothing to do with this and was possibly a really severe stomach flu) and there are no restrictions on my lifestyle right now. I can do everything I’ve been doing and I don’t need to worry about this hurting me or causing major issues right now. While it’s not great to have something in your body that isn’t supposed to be there, this isn’t a huge deal and whatever ends up being the plan will be just fine. I promise to keep you all updated as I have more information!