Tag Archives: worry

Avoiding Something I Should Be Doing (or Scared Of What I’ll Find Out)

Posted on April 10, 2019 | 1 comment

Usually, if I know something is going to help me or be good for me, I don’t hesitate to do it. There are a few exceptions, but I don’t normally waiver on the idea that something is going to better me. For example, even though I knew going off hormonal birth control would likely be an issue for me, staying on it was going to make my liver tumors continue to grow. I stopped the pill without a second thought. When I knew that I needed to add different supplements to my life to help with recurring medical conditions, I went to the store and bought them after leaving my doctor appointment. Even getting the non-wart/actual tumor off my face was something I didn’t go back and forth on once I found a doctor willing to do it.

But lately, I’ve been avoiding doing something that I know I probably should do. I have a few different autoimmune conditions and for one of them I deal with it flaring up. When I have flares, it causes very painful bumps on my skin and it can affect so many aspects of my life. There’s no cure for it and most treatments have a lot of negative side effects. And my condition is not nearly as bad as it is for many people so a lot of treatment options aren’t even options for me yet since they are for people with much more severe cases.

But something that I could do would be to find what my triggers are for my flares. Most people find that there are certain foods or categories of foods that trigger flares and you can stay almost flare-free if you avoid those foods. And the easiest way to figure out what foods cause flares is to do something called the AIP diet (which stands for autoimmune protocol diet). It’s like an elimination diet where you don’t eat foods that are common triggers for a period of time and then you slowly add the foods back in one by one. That way, when eat something that causes a flare you will know what it is so you can make sure you don’t eat it. This isn’t a diet that is meant to be long-term. You only follow the protocol until you know what your triggers are and then you go back to normal and just avoid the foods you need to.

I’ve known about this diet for a long time, but it was only recently when I decided to do it because I noticed I was having flares more often than normal. I originally planned on doing it after I had my trip last month, but then I got sick. There was no way I could follow the rules while sick and I knew my food habits would be weird then so I had to wait until I was better. And once I was better, I was dealing with pain and nausea so I decided to wait.

But this is just sounding like one excuse after another. And I had to think about why I have been acting like this. It took a few days of me doing some real soul-searching and thinking, but I think I finally realized what it came down to.

I’m terrified of what I will or won’t find out by doing this diet.

First, I’m scared I will find out I can’t eat foods that I love anymore without having flares. I would hate it if I couldn’t have dairy, eggs, or certain fruits and vegetables anymore. But I know that this is very likely because something is most likely one of the triggers for my flares. I don’t want to have to worry about every single thing I eat and if it has something in it that I won’t be able to eat. I’m scared that it will make eating at a restaurant difficult or that I will find it hard to adjust if something I love has to be out of my diet.

But I’m also scared that I won’t find out that any foods are causing flares. If I can’t find something that triggers them, that means I can’t do anything to help myself for now. I either have to see if I can do a treatment option that may be too harsh for me right now or I might have to wait to see if things advance to a more severe stage.

I don’t know which of those two terrify me more. They both sound horrible and I would be upset if they happened. But at the same time, doing nothing isn’t a good option either. I know I want to see if I can do something to help my autoimmune condition so that I don’t have to stress out about when a new flare will happen. I am lucky that the condition I have does tend to have food triggers because not all conditions have that. I have options I can try before I go to medications with lots of side effects and I owe it to myself to try those.

This is something that isn’t just something I should do for myself but what I need to do for myself. I do still need to do a bit more research on the plan so I can do it successfully, but I have a feeling I’ll be doing it soon so that I can try to find out some answers.

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Am I In A Rut? (or Not Sure What To Do About Work)

Posted on October 4, 2018 | Comments Off on Am I In A Rut? (or Not Sure What To Do About Work)

I’ve had several friends that have been in ruts lately. Sometimes they realize this on their own, and sometimes they have something dramatic happen in their lives and then they realize they can’t just keep doing things the same way anymore. Either way, I’m always so proud of my friends when they are able to make positive changes for themselves. They always seem so much happier and all I want for my friends is for them to be happy.

I’ve been in a couple of ruts in the past before. Sometimes it’s a rut with my day job and sometimes it’s a rut with my fitness or health. It’s not easy to change things up, but when I do I always feel so much better and I feel like the change was necessary. These ruts have led me to some new and fun things and I’ve never really had any regrets. I just see these changes as positive moves in my life and even if they don’t work for me I am glad I just tried to see if they would.

I don’t necessarily feel like I’m in a rut right now, but because I have so many friends going through them I’ve been questioning it. Things have been pretty stable and boring for me lately, but I like that. I have things in my life that are hectic or dramatic, so I like having other aspects of my life normal and routine. But I also know that sometimes when I feel this sense of comfort in my life that means I do need to make a change.

The main thing I have been debating about is my day job situation. I’m fine with my box office job right now. I would love if I got paid a bit more, but I should be getting a small raise around the new year. But my other day job hasn’t been able to tell me yet when they can bring me back. I haven’t worked for them since the end of September. I thought a month or two off wouldn’t be too bad since that job didn’t pay me that much. But even missing that little bit of income is affecting me and I know I need to figure out something.

I’m going to try to wait it out a bit more because I do want to keep working that job. It’s really an ideal situation because I can do it between the customers at my box office job and my boss knows me well so she doesn’t have to micromanage me. Plus, I actually enjoyed the work. It wasn’t that tough to find events to add to the calendar, but it was fun seeing what different things were happening around LA and different organizations that I might be interested in doing things with in the future.

I think waiting it out really is the right choice because I’m so unsure if I need to make a change. I don’t want to stress too much about when I will be working with them again, but I also know that eventually if they can’t add me to a new contract that I will need to find a new job. So I have casually looked at jobs online to see what is out there. It’s tough because I have requirements that aren’t always compatible with all jobs, but at least I’m not under a time crunch right now.

I think that this uncertainty with my job is just something that I feel from time to time. I have felt it with almost all jobs I’ve had as an adult. I wonder if I am doing what I should be doing or if I will be blindsided one day by losing my job. I want to be a step ahead so that if I do lose my job I am not at a disadvantage. I’ve been in jobs where I had no clue I was going to be let go and I hate that feeling. But I also know that this situation I’m in now isn’t that. As soon as my boss has a better idea of what will be happening she’ll let me know. It has nothing to do with me or my job performance. It’s just the downside of working a contract gig that depends on government funding.

I have said this a million times before and I’m sure I’ll say it again, but just getting all that out has made me feel so much better. I needed to rant and typing it out has helped me get into a better mindset. This blog seriously is one of my best forms of therapy.

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Default ThumbnailAnother Rut In My Life (or Time For Some Shopping) Default ThumbnailGetting My Butt In Gear (or Missing Out On Fun Stuff To Work) Default ThumbnailWork Begets Work (Old Bosses Possible New Jobs) Default ThumbnailWork Work Work (or Another Very Part Time Job) Default ThumbnailWorking To Find Work (or Maybe My Last Work Related Post Did Get Read) Default ThumbnailReadjusting (or I Guess I Forgot What It Felt Like To Work My Work Schedule)

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Trusting It Will Be Ok (or Dealing With Stress In A Healthy Way)

Posted on February 9, 2017 | 1 comment

Even though a lot of recent events should have added a ton of extra stress in my life, I’ve been doing ok. I’m not letting any of my health issues get me down since I know that having a bad attitude won’t change anything for me. Money issues are still toward the front of my mind, but I’m also trying to not stress about those. I have had some things get better for me financially recently, but I think understanding my financial status by budgeting has been really great at keeping the stress down. But in the past week, things just have taken a crazy turn for me.

First, my weight loss is going a bit haywire. I know I should be losing weight, but it’s not showing up on the scale. In fact, the scale has been going up a lot recently. I don’t know what’s happening or why things aren’t going my way, but I’m trying to figure out what I can do to control the situation. This is stressing me out because I’m worried about trying different things when other things have worked for me in the past. But I also know that I need to get this under control and going the right way again sooner rather than later. But I also know that stressing about it is not going to help (and telling myself to relax just stressed me out more).

I’ve been stressing a lot about time management lately too. I don’t know why my days seem to be going so quickly and that I don’t have time to do everything, but that’s how I feel. I have a huge list of things to get done every day and I’m not making a huge dent on them each day. I’ve been tracking my time and there isn’t a ton of wasted time each day. Maybe I’m just taking on too much, but I feel like it shouldn’t be too tough to get all the things done each day that I set out to do. I know that going on Disney adventures doesn’t help, but those were on days where it seemed like my week was going to be super calm. But as the week goes on, things start piling up. I’m just trying to keep up with my to-do lists and hoping that something clicks soon.

And the thing that is causing me the most stress, especially in the last week, is the film festival that I run. The festival is happening this weekend, and everything was perfectly in place until last week. We discovered that our contact at the venue was no longer working with that venue and there was no record of our festival being scheduled to be there. Fortunately, the owner of that venue has another venue that we are going to use. But it is causing a lot of unknowns with the festival. I’ve never run it at any other location than our old one so I’m worried that things won’t be ok. I went to the venue for a site walk through earlier this week and that helped. But until Sunday is done, I think this will be causing me a ton of stress.

I hate that things are causing me so much stress, but it is also a good thing for me. In the past, I haven’t always had the best coping skills. Having a binge episode was a common way for me to deal. And when I found out about the venue for the film festival not having us scheduled, the first thought into my head was what I wanted to go eat for dinner that night. Even though I had planned out my meals for the week, I wanted to go get something that wasn’t a part of my plan for dinner. I wanted to eat something that would distract me from worrying about things. But I didn’t do that. I drove home and while I didn’t eat exactly how I had planned to do so that day, I didn’t do anything too extreme. I had to deal with my feelings the way a healthy person does and it wasn’t easy. But I did it and I got through it.

I hate feeling so stressed out about so many things, but this is just how my life is right now. I’m trying to trust that things will turn out ok, and in most cases I can see how things can get better. But until they do get better, it isn’t easy for me. All I can do is trying to get through these issues and know that when it is done I will have better coping skills to get through things in the future.

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Adventures In Healthcare (or Trying Not To Be Too Political)

Posted on January 20, 2017 | 1 comment

Today is the inauguration of President Trump. Those of you who follow me on social media probably know how I feel about this, but I don’t want this post to be all about political parties. But with a new president coming in, there are some things that do concern me as a citizen of this country.

Almost all of the things that concern me are related to healthcare. Mainly, the idea that the Affordable Care Act will be repealed (and potentially replaced with something to be determined later). While I always have had healthcare, it wasn’t easy for me before the Affordable Care Act. And now with the threats that it will be taken away, I’m worried for me and the millions of other people who are in a better situation because of it. And so on inauguration day, I want to share my story of why the ACA matters to me. Maybe you don’t care if it goes away, but hopefully you can at least understand why it is something that scares me.

I was born into having amazing health insurance. Thanks to my dad, I had great coverage through Kaiser growing up. My insurance was covered under his job and we didn’t have to pay a monthly bill and almost everything I needed was covered under my insurance. I was totally spoiled with my awesome insurance and didn’t realize it wasn’t like that for everyone. I just assumed everyone could go to the doctor and it would be taken care of. Even with my hip surgery and all the craziness around that, it was completely covered and all of my bills said that the patient responsibility was $0.

When I aged out of my dad’s insurance coverage (which fortunately was right after my hip surgery), I applied for regular Kaiser insurance. All of my doctors are with Kaiser so there was no question to me that I would continue using them for my healthcare. I applied and assumed that while it wouldn’t be free anymore, I would get insurance and everything would be fine. But it wasn’t.

I got a rejection letter from Kaiser saying that they would not cover me because of my pre-existing conditions. Among my pre-existing conditions were my hip issues, my eating disorder, my weight, having a history of strep throat/tonsil issues, and having a history of gallstones. I was not a desirable person to insure and Kaiser didn’t want to cover me. Being rejected for pre-existing conditions sucked. I had an option to get COBRA for a year or so, but it would have been something like $3,000 a month to be covered.

Fortunately, I talked to someone at member services at Kaiser who explained that there was something called conversion insurance. Basically it was insurance for patients with pre-existing conditions that are considered too high risk to insure but previously had Kaiser insurance so Kaiser didn’t want to reject them completely. I was eligible for conversion, but instead of being about $100 a month (which is what it would cost for a woman to have regular Kaiser insurance), it was over $500 a month. That’s a lot of money, but because I needed health insurance my parents helped me out so I could get insurance.

I didn’t have as amazing of insurance as I did before, but it covered most of the things I needed. When I had my tonsils out, it cost $250. When I needed birth control refills, it was $30 a month. The out-of-pocket costs without insurance would have been insane, so having expensive insurance with higher deductibles and costs was worth it.

Then the ACA passed and I became eligible for regular insurance again! Not only that, Kaiser could no longer charge me more because I am a woman so things would be even cheaper than I thought. My new insurance is about $250 a month (I’m also eligible for subsidies because my income level is below the limit) because I got a silver level plan knowing that I would have more doctor appointments than the standard patient. And this was before the liver tumors so I’m more grateful now that I’m covered.

When I recently had my breast MRI, there was a debate if it would be fully covered by Kaiser. With my dad’s insurance, it would have been totally free. With my conversion insurance, MRIs were not a covered benefit so I would have paid full price. With my ACA coverage, MRIs are $250 but cancer screenings are free so it wasn’t known what my MRI would be classified under. I didn’t pay that day, but the other day I got a bill.

I got charged the $250 that is my standard MRI deductible. But you can see that if I had my old conversion insurance, it would have cost almost $2,700 to get this cancer screening that my mom’s geneticist recommended that I do. To know that a test that doctors felt I needed could cost more than my rent is ridiculous. I don’t know how people could afford that if they had to pay the full rate. That’s so expensive and it made me even more grateful for my ACA coverage.

With my upcoming liver surgery, I know I’ll hit my out-of-pocket maximum for the year. That maximum is about $8,000 (much lower than the $50,000 maximum my conversion insurance had) and while that is still a lot of money, it is a necessary cost and a fraction of what it would cost if I wasn’t insured. I’m not going to worry about the money now because I know I will get help to pay for it and my health is more important than money. Plus, on the positive side, I believe that once I hit my out-of-pocket maximum that I won’t have to pay for doctor appointments for the rest of the year!

I know I will be ok for 2017, but I’m scared what will happen to me after the year is done. If the ACA is gone, can Kaiser tell me that they don’t want to insure me anymore? I’m even more high risk with my pre-existing conditions now. If an insurance company could reject me, I totally understand why they would want to. But for me, I know I need to have insurance because of my pre-existing conditions. I will always have my hip issues, I will be considered high risk if I ever get pregnant because of the tumors (even if they are taken out, there is a risk of them coming back with pregnancy), until I stop getting treatment for my eating disorder that will always work against me if an insurance company can reject me, and I’m assuming that having to have part of my liver removed will make me even more high risk.

I know a lot of people get insurance through their employers and they are mad that their premiums have been going up. But that doesn’t have anything to do with the ACA. Premiums have been going up for decades every single year because health insurance companies can do that. It’s the same as car insurance premiums going up or home or renters insurance going up. And for those people who will have nothing change with their health insurance if the ACA is repealed, I can understand why they don’t care too much either way. But for me and millions of other people, losing the ACA can be horrible. For me I know it won’t be a death sentence, but I have friends who could have their lives at risk if they can’t get insurance to help pay for life-saving medication. Hoping that you can afford to live shouldn’t be something that people think about.

I know that there has been a lot of backlash from the threat of repealing the ACA, especially with no replacement in mind yet. I’m hoping that politicians will listen to how scared their constituents are about this. Maybe President Trump will worry about being popular and liked and realize the majority of people do not want the ACA to go away (or go away before we know what the replacement will be so we know we won’t be uninsured). I can only hope that next year, I will not be worried about this and I will still be able to get the healthcare that I need to stay healthy.

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Day One Of Unemployment (or Trying To Not Stress Out)

Posted on January 27, 2014 | 1 comment

I’m out of work again for the end of the season. This is now the third time we’ve had this break, but this time it’s different.

We aren’t sure when/if we are returning to work.

Nothing has been communicated with us officially, so I’m still waiting to see for sure what is happening. But just in case, I cleaned out my desk before I left after my last shift on Saturday.

I’m still working some show shifts (I did one after my last shift on Saturday and I have another one tomorrow), so I’m not completely out of work, but those show shifts aren’t enough to live on.

I’m going on unemployment again, but I’m looking hard for a new day job. I don’t want to be in a situation where I’m out of work for too long. And best case scenario, we do get asked to come back to work for the next season and all of this looking is unnecessary.

But this uncertainty has kind of screwed up my plans for this time off. I was planning on taking an improv class (finally). At UCB, they have an intensive class where you go every day for 2 weeks instead of 1 day a week for 8 weeks. But now I don’t want to take that because I don’t want to be unavailable if I get a new job.

And I have my trip in March with my sister-in-law to New York. No matter what, I’m still going on that trip, but I have to remember to mention that to any potential new jobs as a non-negotiable vacation.

I’m still planning on having fun, I just have to be more structured with my time. I’m hoping to make it to Disneyland this week (my pass expires soon and I want to make sure I get a few more visits in before then). And I’ve made plans to see friends who I feel like I haven’t had a chance to see in forever.

I know that I’ve been saying for forever that I want to get a new job. Now, I pretty much think I have to. I don’t have the crutch of my other job anymore to rely on. I am going to see if there is another job at my workplace for me, but I’m not sure there will be one with enough flexibility for me. But it can’t hurt to ask.

I’m really not trying to worry about things, but when everything is up in the air like this, it’s hard not to think of the worst.

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The New Normal (or Worrying From Far Away)

Posted on September 19, 2013 | Comments Off on The New Normal (or Worrying From Far Away)

Yesterday was my mom’s first day of chemo. She did awesome, I had a weird day.

I was at work for the day (only a few more days left before unemployment). And my whole shift I was wondering what was happening with my mom. I know that my dad was with her so she wasn’t alone. And I helped her get her laptop set up for Netflix so she could watch tv shows while getting the treatment (she picked out “Orange Is The New Black” and “How I Met Your Mother” as the shows she’ll watch during chemo). But I had the weirdest thoughts in my head.

I was curious if she made any friends in the chemo room. I wanted her to have a good time while there (or as good of a time as you could while getting chemo). I wanted the nurses to be super nice to her (turns out, my mom gave them all triple-layer brownies so they love her even more than they already did).

A friend joked to me that I’m almost worrying about her like a parent worries about their kid on the first day of school.

My mom texted me as soon as she was done yesterday and I also talked to her on the phone, so I know that she’s ok. And I really have no question that she will be ok.

But it’s weird not being there for her and my dad. I’m planning on flying up there sometime next month to hangout and do some more cleaning on my old bedroom (which was turned into a gym about 10 years ago). But somehow I feel like I should be there 24/7.

I know that that isn’t a reality, nor do my parents want me there all the time. But I feel kind of helpless in LA. When I talked to my mom yesterday after her chemo, she was talking about how she was making dinner for the next night so she didn’t have to worry about it then. She shouldn’t have to be making dinners (but she does love to cook so it isn’t a total chore for her). I should be. And yes, I’ve looked into the cost of me making food and shipping it to her and it is beyond ridiculous. Maybe if I win the lottery or something I could do it, but it won’t be happening otherwise.

So for now, I’m just at my house waiting and worrying. I know that eventually, all of this will feel normal to me. I’m just hoping that that eventually comes soon.

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Fearing The Worst (or Trying To Hope For The Best)

Posted on March 5, 2013 | Comments Off on Fearing The Worst (or Trying To Hope For The Best)

I’ve previously mentioned my hip issues on here. Also, my hip defect is pretty popular now since Lady Gaga has had surgery to correct the same issue that I have. This is something I’ve been dealing with since 2005. My right hip surgery was July 7, 2006 and my surgeon was sure I’d need my left hip done within 5 years.

And until recently, I’ve been doing pretty great! I have the occasional pains, but nothing like what I was having with my right hip prior to surgery.

But last week, I started to feel more pain more often. My left hip was having a catching sensation about 60% of the time. That’s not good. I was in a little pain, but it was more of a dull pain, and I am used to feeling a sharp almost electrical shock sort of pain.

So I decided to make an appointment with my hip surgeon to get checked out. My appointment isn’t until next month, but I’m already starting to freak out a little.

Maybe it’s because I’m starting to realize that my next surgery might end up happening within the next year or two. I don’t want to have surgery soon, because it will affect my brother’s wedding. I know that when I have surgery I will be on crutches for 2 weeks prior (due to not being able to take pain meds) and for about 6 weeks after. I don’t want to be on crutches in Maui, nor do I want to be in the first few months of recovery (it’s not the most fun time of my life).

Freaking out like this about my hip is all new to me. The way my right hip started to hurt was pretty sudden. I was walking in the Portland airport and I collapsed. I was barely able to walk after it, and the pain was so intense that I was scared that I did some serious damage. When I got back to LA, I went to the ER (I had pretty awesome health insurance then), and ended up being misdiagnosed. 6 months later (and after having to be on constant pain medications), I found out what was wrong with me and made plans to have surgery.

This time, I’m aware that I have a problem and have to wait for it to get bad. I was warned that this time, I might not have a sudden tear in my cartilage. It could be a slow process. I’m scared that the pain and catching sensations I’ve been having are the start of it.

But I’m really trying to stay positive. I have about a month to go before my appointment so there’s no use worrying yet. And after my appointment and x-rays next month, my surgeon might tell me I still should wait to have surgery.

All this freaking out might be for nothing, but since I know my left hip is a ticking time bomb, I’d rather freak out more than I should than neglect a problem that might be starting.

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