I’ve been working with my dermatologist on a lot of different conditions over the past few years. Some have been ongoing conditions and some have been one-off discussions or resolved within a few appointments. I know I have said this before, but I’m lucky to have a doctor on my team who works with me to figure out solutions and listens to me and my concerns. I know not everyone has that experience or the ability to speak up for their concerns. But I made sure that the doctors I see worked with me and not just talked at me. Not all the doctors I’ve seen are like that, but if they don’t see us as a team I don’t go back to them.
This is so important with all my doctors, but especially when you are working with someone for an extended time. When it’s not just a few appointments and then you never see them again, you need to make sure that they really hear what you have to say. And I think the positive experiences I’ve had with doctors that I’ve had to see for years is because I am willing to say that I want to find a different doctor to work with. I probably should have done that sooner with other dermatologists I’ve seen in the past because I have wasted so much time trying solutions that weren’t working but I wanted to keep trying what they told me to do.
Even though I have a few different ongoing conditions I work on with my dermatologist, my appointments aren’t that frequent anymore. Most of the things I’ve working with him on are going to be things I have to deal with for the rest of my life. Or if they can go away, it might be years before that happens. With my autoimmune condition, I know the end goal is to be in some sort of remission. This isn’t always possible, but it can happen. But the things that can get you into remission can be more extreme than what I’m willing to do at this point. There is a surgery that I could have that would help me significantly, but the recovery process would be very lengthy and painful. Maybe one day I’ll get there, but it’s not what I want to do at this point.
I had another follow-up with my dermatologist this past week and I knew it would likely be an easy appointment. I’m not in remission with my autoimmune condition, but things have gotten so much better over the past few years. I think I’m in a lower stage of the condition than I have been in years. I still have quite a bit of pain to deal with, but it’s more manageable now and that’s something that I never thought could happen. I know my doctor would have liked to see more improvement with me, but I’m happy that things are just stable where they are and they aren’t getting worse. It used to be stable years ago before things started to get really bad. And now, it’s stable but in a good spot. Maybe I’ll have some more regression and it will stabilize at an even better spot, but I’m not too worried about that right now. My main focus is hoping that it just doesn’t get worse again.
And because things are stable, my plan with my doctor is stable too. I’m going to continue the same medications I’ve been taking since they clearly are doing something to help manage this condition. I also use certain body washes to help my skin and I just need to continue to use that as well.
Having boring follow-up appointments like this is becoming more common for me, and that’s a good thing. I’ve had so many ongoing medical conditions for so long and to have them stabilize is so awesome. The more stable things get, the more boring my appointments are. I never knew that I was hoping for boring appointments in my life, but it turns out that it’s one of the best things and something that I continue to hope will happen in the future.
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