A little over 5 years ago, I had what I believed was the worst gallbladder attack of my life. I was sure that’s what I had since it had a lot of the same symptoms as the other attacks I’ve had. But this one was lasting hours and not going away when in the past it would maybe only last an hour or two. I was up all night in pain and went to the hospital that morning sure that they were going to wheel me into the OR to have my gallbladder removed. But it turned out it wasn’t a gallbladder attack (it’s still not really known what happened to me), but that day at the hospital we discovered what was believed to be a cyst on my liver.
After more medical testing, we learned that I had 3 tumors and my journey from needing surgery to being a medical miracle started. Honestly, nothing has been what I expected and I’ve tried to roll with the punches as much as I could. But it’s been tough. A friend of mine described the feeling I dealt with perfectly, body betrayal. I felt betrayed when I found out I had tumors because I had no clue that something so crazy was happening in my body. And I felt betrayed when they shrank because again I had no clue this was happening. Of course, I was grateful they shrank and I could avoid surgery, but the disconnect I had with my body was a struggle.
And for the past few years, I’ve had MRIs to check my liver and make sure that my tumors weren’t growing. I’m very lucky that they actually continued to shrink. And at my last MRI, you could only see 1 of the 3 original tumors. And that tumor was 10% of its original size. I was supposed to have an MRI last year and if my tumors were still the same that would be the last one. Because of the pandemic, I didn’t go last year (which was ok with my liver surgeon). And this year, when I was at my annual well-woman appointment, I mentioned to my doctor that this year I’d do one more MRI and maybe that would be the last. Fortunately, she was able to order the MRI for me so that was a lot easier to schedule. And this past weekend, I had my MRI.
I didn’t realize this at the time, but this MRI was 5 years to the day from the original MRI (when we discovered that it wasn’t a cyst but a tumor). I’ve had enough MRIs at this point to know the routine. I also know that usually there is a bit of a wait, so I come prepared with a book and other things to keep me busy. But I don’t know if it’s because this was on a weekend or if things are still slower than normal, but for this MRI I didn’t even go to the waiting room! As soon as I was done checking in, I was brought back to the MRI room. Just like every other MRI, it wasn’t that fun. I also had double claustrophobia because of the MRI tube and wearing a mask. I managed to not have a horrible panic attack, but I had a couple of little ones during the scan. I just tried to take deep breaths (when I didn’t have to hold my breath) and I tilted my head back to be able to look into the room behind me.
From the time I checked in until I was heading out was only about an hour. This was by far the fastest MRI I had. I didn’t even get a fun pre-MRI photo like I normally do. But I took one after it was done so I could add it to my collection of photos.
I normally have a follow-up with my liver surgeon after my MRI to go over the results. I might have the follow-up over the phone this time, but I also might not have the usual follow-up since a different doctor ordered the test. But I did already get my results back.
I know it’s a lot of doctor-speak, but basically this says that there is only 1 tumor visible in my life and it’s 1cm. This is exactly what it looked like 2 years ago and what I know my liver surgeon was hoping for. He told me it would be very unlikely for the last tumor to be completely gone since it was so large to begin with. But staying the same for 2 years is really the best outcome. I also had a few other things in my results (I still have gallstones and there is a small benign cyst on my kidney), but for the most part, everything else is either completely normal or exactly what it’s been like for a while.
This is a bit anti-climatic, but I guess this is probably the end of my journey with my liver tumor. If I have a follow-up call with my surgeon, I guess he will probably confirm that. But he did say the last time I saw him that as long as my tumors aren’t bigger than they were before, I won’t need another MRI. Of course, there are a few things that can happen in the future that could change this (if I use anything with synthetic hormones, I probably will need to be monitored again). But unless that comes up or if I have any odd symptoms, I will probably just live the rest of my life with this small tumor left in my liver hanging out.
The last 5 years have been crazy with my liver tumors. I’m just glad that it seems like this is finally a part of my past and I don’t have to be too worried about them anymore.
You Might Also Like
3 Years Knowing About The Tumors (or I Forgot An Anniversary)
A Gallbladder Reminder (or Hopefully This Is A Random Event)
Another Story About A Tumor (or I Guess I Was Misdiagnosed For Over 15 Years)
3 Years Of Being A Medical Miracle (or Just Enjoying Being Healthy)
Back To Focusing On Health (or Back To Back Doctor Appointments)
A Non-Surgery Anniversary (or Another Year Of Being A Medical Miracle)
