As I mentioned in my post about getting my most recent MRI, I already knew that my liver tumors had shrunk again. That’s awesome news and I was so happy to hear that since if the tumors had grown or stayed the same I might have needed surgery. While I was mentally prepared for surgery since I thought I was having it earlier this year, I really don’t want any surgeries if I can help it. But even though I already had that good news, I didn’t know too much about what was happening which is why I met with my liver surgeon this week.
I actually hadn’t seen my liver surgeon in almost a year. I didn’t realize it had been that long, but the last time I saw him was after my second liver MRI (when we determined what type of tumors I had). After my MRI in April I didn’t see him since we had a phone call instead of me spending money for an appointment. He didn’t have a ton of answers for me then except that we should not do the surgery then because my case is pretty unique. So I was happy to see my surgeon again to discuss the plan and see what he thinks is going on.
I seriously have an awesome liver surgeon. I was randomly assigned him after it was discovered there was something happening with my liver, but I couldn’t have picked a better doctor. He totally gets that I want photos of my tumors, sends me the full radiologist report, and doesn’t mind that I always come in with a list of questions. And he talks to me normally (not talking down like some doctors do) and I think he is honestly entertained by my case since I’m so weird. In this past appointment, he said how he read about a case like mine in school but never thought that he’d get a patient with shrinking liver adenomas. I’m happy that he’s excited about what’s happening too.
This appointment was pretty easy. I already knew that the tumors shrank and he knew I’d want a bunch of photos of the screen showing my MRI so he set it up where we could see a side by side comparison. I did some editing since I know not everyone knows where the tumors are in my scans, but as you can see it’s pretty clear that the tumor is significantly smaller than it was a year ago.
In October last year the big tumor was 10cm, in April this year it was about 4cm, and this month it measured at just over 3cm. The smallest tumor is still gone (or too small to be seen on a scan) and the medium tumor is 1cm (it started at 3cm and measured at 1cm in April). My surgeon said that I’m in a pretty good spot now. He doesn’t recommend surgery for me since the tumor is small enough to not be a risk for me and the placement of it now has improved. There are still risks of it growing if I am pregnant one day, but he said that he isn’t worried about it.
We discussed options to get rid of it. There are some less invasive options than surgery, but because of the placement of my tumor they aren’t things I can do. My tumor is pressed against my stomach so anything like radiation or burning the tumor would risk injuring my stomach. The risks of those procedures outweighs the benefit of taking out the tumor. But we did talk about how there is a chance I’ll still need my gallbladder out one day and he said we could easily do the tumor removal at the same time. So now I know that whatever comes first (needing the tumor out or my gallbladder out) will also make the other surgery happen at the same time. I kind of like the idea of a 2 for 1 surgery.
We also discussed things for my future. Pregnancy is no longer as risky for me as it was when the tumors were larger and I pretty much knew that already. But in the past my surgeon mentioned that fertility treatments and hormone replacement therapies would not be an option for me because of the tumors. But this time, he said since it would be such a small procedure to take the tumor out, if I needed either of those one day I could just have the surgery to take out the tumor and then I could do them. I was not expecting that and it actually was a relief to hear that. I hope that I don’t need fertility treatments, but I’m aware of how many of my friends have issues getting pregnant (and I’m not getting any younger) so it’s nice to know that is an option if I need it. And I know that many women really have relief from menopause from hormone replacement therapy so it’s good to know that could be something I could use if I need it.
Besides discussing those few things, there really wasn’t much else to talk about in my appointment. There is still no medical explanation for why the tumors shrank when they usually don’t. I think it’s my visualization work that is helping do this. But there is nothing that my surgeon can tell me that I need to do or keep doing so my plan is to not really change anything. Since we don’t know what is doing this, I don’t want to change something only to discover that is why things are working.
Since there is no plan to have surgery (at least not until I need my gallbladder out), my surgeon told me that if I didn’t want to do any more follow ups I didn’t have to. While that’s a nice idea, I don’t think I would be able to not be worried about the tumors. So the plan now is that I will do another MRI in a year and we will have another chat about what’s happening. Hopefully the tumors are smaller in a year, but even if they aren’t I know they are an ok size right now.
It was weird enough to not have to do any liver related stuff for 6 months after my surgery was cancelled, but to be able to go a year without anything is even crazier! But I have no reason to worry about anything and now I get to work on hoping to continue to be a medical miracle and hopefully my appointment in a year will go as easily as this one did!