Tag Archives: surgery

Explaining Myself (or It’s Not Disappointment)

It’s been over a month since I was supposed to have surgery. By now, pretty much everyone in my life knows that my surgery was cancelled and the situation around that. I tried to email and text most of my friends as soon as I knew and many other people found out though here or social media. But every so often, I’ll run into someone who had no clue that I didn’t have surgery. Sometimes they are surprised to see that I’m looking so good or out and about and sometimes they are just assuming everything went fine and I forgot to tell them about it.

Each time I run into someone who didn’t know (or I meet someone new who is finding out about the situation), I feel like I have to explain the entire thing. I have tumors, they aren’t supposed to shrink, somehow they did shrink, we don’t know how it happened because I didn’t change anything in my life, I don’t know what’s next for me. And so often people tell me that I sound disappointed that I didn’t have surgery and I should be grateful that somehow I beat the odds.

It’s not easy to explain that I am grateful. I didn’t want surgery. I was stressing about surgery from the day I found out I would be having it. But at the same time, I spent 6 months knowing that I have tumors inside of my body and was excited to get them out of me. Now I only have 2 tumors so at least there aren’t 3, but I still have to be ok with the idea that there are 2 tumors just hanging out in my liver.

But even though I’m grateful, I’m still a bit skittish about this all. I am supposed to have my next MRI in about 4 months to see what’s going on (as long as there’s nothing that causes me to need a MRI sooner). Once that happens, I’ll meet with the surgery to make a new game plan. We have already discussed a bit of a plan where if the tumors are bigger I’m having surgery and if they are smaller we are going to keep waiting. But if they stay the same size as they are now, it’s a bit of a gray area.

My tumors are small enough and in a position in my liver that they aren’t as risky for me to keep as they were before. But there are still potential risks for me later in life if they stay in there. So there is this great unknown of what the next step will be or if I will be having surgery in the future. One thing I love about my OB/GYN and my liver surgeon is that neither of them are afraid to tell me that they don’t know the answer to something. But it’s a bit frustrating when neither of them know what the long-term plan for me will be.

And if I do sound disappointed about any of this, it’s because I had a plan in place. I was going to have surgery, the tumors were going to come out, and that was going to be that. Now I’m in another situation where I don’t know what my future will be and I don’t like that. I don’t know if in the fall we will have to plan for surgery and then I’ll need to do a lot of the same prep work that I had just done. Or maybe I’ll continue to be a miracle, the tumors will be smaller, and they will be small enough that there are pretty much no risks for me anymore.

The other weird feeling I’ve been dealing with is wondering at times if I totally imagined this all. Maybe I needed the surgery to make it feel real? I’ve had this feeling with some pretty intense news in the past. When I found out my mom had cancer or my grandpa died, I was almost wondering if I dreamt it and it wasn’t real. I was almost scared to talk to a friend to get support because I wondered if somehow I’d find out that it wasn’t true and would feel silly. And that’s a bit of what I’ve been feeling about my tumors. I made a huge deal about them and then it became almost nothing. I feel like I shouldn’t have made such a fuss about them (even though there was no way for me to know they would shrink). But nobody has been making me feel bad about things, only myself.

I know that most of you reading this understand my feelings. I’ve had several friends who have dealt with medical issues totally get what I’m talking about. It’s a weird feeling to want to be grateful but be worried at the same time. And hopefully as time goes by this feeling will be less intense and less often. It’s gotten so much better over the past month and hopefully the next month will make it less of an issue. And eventually, this will maybe just be a weird story that I can share from time to time without having any feelings attached to it.

Feeling Normal Again (or Happy To Be Back In Control)

My last few posts have been about getting back to my usual self. While I haven’t been writing about that too much, I think this is something that I’ve been struggling with for a while. It’s easiest to say that I’ve been struggling since I found out about the tumors because it seems like I’m splitting my life into before tumors and after tumors.

As soon as I knew about the tumors, my life got crazy. There was the scheduling of tests and planning for surgery, but that wasn’t what really got to me as much. It was the disconnect I felt with my body and life because I couldn’t understand how I could have massive tumors and not know about them. I felt out of control and not in charge of my own body and life. It’s such an odd feeling and I wasn’t able to express myself properly.

Control is a weird thing for me. Eating disorders are usually all about control. I question if mine is a control thing since I’ve likely had my eating disorder since I was a kid, but maybe it has a little to do with that. I control what I eat, how much I eat, and when I eat. While I do feel like I’m in a trace while I’m having a binge episode, maybe there is an element of control in that. So to feel out of control isn’t the best thing for my eating disorder.

And when I found out the surgery was cancelled, my first feeling wasn’t one of relief but one of feeling out of control even more. Now, not only did I have tumors and not know about them but they were able to shrink and there’s no way to know why and I can’t control the shrinking. Also, I didn’t know my tumors were shrinking so I was not able to control anything about that.

I really do feel like my soul and body have healed a lot in the past few days. I don’t know what triggered it, but getting back to my regular life is probably a lot of it. I’m a creature of habit and routine and being able to get back into my routine from pre-tumor time is nice. I haven’t had that since October (when we found out there was something wrong with me) and now that I’ve had a few days in my old routine it’s been very reassuring for me. There are still tumor related things in my life (no birth control pill, needing more medical tests, the possibility of surgery in the future), but this is the closest I’ve been to my old routine in a long time.

I’ve been having such a feeling of calm while doing things that I’m used to doing. Being back to a normal work schedule (and not having to work extra hours to bank them for time off) is so nice. I have free time 2 work mornings a week so I can do errands or just take my time getting ready for the day. I’m adding fun things back into my calendar and not stressing about how I’m spending my time after work (before, I was worried if I should be doing something to prepare for surgery instead of having fun). I’m able to get back to auditioning when opportunities come up and not worry about when the shoot dates are. And I can put the idea of my tumors in the back of my mind when I can.

I’m sure that the tumors are going to be something I worry about the rest of my life. Even if at my next MRI they appear to be completely gone, I will still be at risk for them to come back with any hormonal changes I will have in my life (pregnancy and menopause are the two biggest ones I’ll have to worry about). And if I am pregnant in the future, I will have to be monitored a bit more than most women. But I’m lucky that I have an awesome OB/GYN who has been doing so much research on the tumors and how to take care of patients with them. So I think I’m going to be fine as long as I have her as my doctor.

It’s weird how nice it is to feel like I have control again in my life, but I’m glad that I figured out what was making me feel off and how I could fix it. I’ve been wanting to feel normal again for so long and I guess it just took some self-discovery to figure out what it would take to make that happen.

Celebrating Not Having Surgery (or Getting To Have Some Family Time)

Today was supposed to be my surgery day. I had planned out blog posts to write while I was going to be in the hospital and how to document my recovery the best way possible. I think I’m still in a bit of shock that the surgery was cancelled and that I’m not going to have to worry about all of that right now. There is still a chance I will be having surgery in the future, but unless something crazy happens soon it won’t be for at least another 6 months or so.

My entire family did so much planning to make sure that they would be able to help me as much as possible through surgery and recovery. While most of my family wasn’t going to be able to be in LA with me, my parents made plans to come to LA for a week to help me get through everything. My parents have come to LA in the past to take care of me after I’ve had surgeries, so I expected that they would do the same this time. But I’m still aware how lucky I am that my parents have the ability to come here to help me out when I need it.

Since the surgery was cancelled, a lot of things have changed but one thing hasn’t. My parents are still going to be in LA with me for the week. I don’t think my parents have ever spent a week with me in LA outside of taking care of me after a surgery, so this will be pretty cool. We are slowly filling our calendar with some fun things that we’ve been wanting to do so we can enjoy this weeklong hangout. I’m going to take a few days off of work since I banked so many hours so I can spend a lot of time with them. But I’ll also be working a little bit as well so I still have some hours saved if I need them in the future.

I think it will be pretty great getting to have this week with my parents here. Normally when they are in LA, they are only here for a day or so and we are pretty busy doing things. They haven’t really met any of my LA friends. But now, they will have a chance to meet all the people I hang out with (and blog about) while they are here. I think it will be pretty cool to get to have everyone meet each other. And my dad is going to join me for an Orangetheory workout too! He usually only does the Thanksgiving workouts, so this will be a nice bonus for him.

I will also be going to San Diego with my parents to visit my grandma. I won’t be in San Diego as long as originally planned (since I won’t be recovering with my parents and I want to work a bit), but I will get to spend a nice weekend with them. It will be much more relaxing this way than it would have been if I was in pain from surgery.

I just wanted to say thank you again to all of you who prayed for my tumors to shrink or put some awesome tumor shrinking thoughts out there. Since I shared the news that my surgery was cancelled, I got so many amazing messages on social media and emails telling me congratulations and how they were so happy for me. I’m so grateful that you all care about me and my health and that you were as excited about my news as I was!

While I won’t be blogging about surgery or recovery now, I’m glad I’ll have much more interesting things to share with you all in the coming weeks. I’m working on getting my social calendar filled up again since I was planning on taking time off. And so far, the things I think will be coming up are going to be so much fun and just a continuation of celebrating not needing surgery today!

A Tumor Miracle (or I Wasn’t Expecting This)

Today I should be going to my pre-op appointments for my surgery. But that has been cancelled because my surgery was cancelled! This is totally not what I expected but it’s true! But I should probably explain a bit of what has happened over the past few days.

When I found out that my tumors were adenomas, I learned quite a bit about that type of tumor. One of the main things that I learned was that they are a 1 in 3 million side effect from hormonal birth control and the best way to stop them from growing more is to stop the hormonal birth control (or whatever hormonal treatment you are taking). But in almost all the case studies, it says that the tumors have to be surgically removed as they typically cannot shrink. And if they do shrink, it’s only a little bit.

One of the reasons I was waiting a few months to have surgery was to hopefully have the large tumor shrink a little bit. The smaller the tumor is, the easier the surgery will be. The large tumor was almost 10cm and in my head I wanted it to be under 8cm. I knew that would take a miracle, but I spent time every single day working on visualization and just trying to be as healthy as possible. But I also knew realistically that the chances of the tumors shrinking were really slim and that’s why I’ve been working so hard lately to get ready for surgery.

I had my MRI last week and I figured that I’d learn about what the tumor situation is like at my pre-op appointment. But on Tuesday afternoon, I got a phone call from my surgeon. Not only did my tumors shrink, they shrunk significantly!

My 10cm tumor is now about 4cm, one of my 3cm tumors is now about 1cm, and my other 3cm tumor is not able to be found anymore! This is seriously a miracle! My surgeon has never seen this happen with any of his cases before. There is no medical explanation for what happened so I’m just considering it a medical miracle! I know that there is some serious power behind positive thinking, but this is beyond what I ever imagined could happen!

While there are still issues that can happen with having the biggest tumor in me, it is no longer as serious as it was before. The size of the tumor and how it is situated in my liver now makes it something that I could live the rest of my life with. It would still make being pregnant in the future a bit risky, but nothing compared to what the risks would have been if it stayed the original size. And I still cannot use any hormonal treatments as long as the tumors are in me.

But since my life isn’t as threatened as it was before, the plan now is to cancel the surgery. My surgeon gave me the option to continue with it, but it is not his recommendation anymore. Instead, his recommendation is to do another MRI in  the fall to see what’s happening if the tumors then. If they are bigger, I will have surgery. If they stay the same size, I will probably have surgery. But there is now the chance that maybe they will shrink even more and maybe disappear completely. This is not normal with these tumors, but nothing is ever normal with my medical situations.

I completely trust my surgeon’s judgement and he has been very open and honest with me about the risks to keep the tumors in and the risks of surgery. He has answered so many of my questions (and there have been so many questions!) and I never felt like he was getting annoyed with me. I’m very lucky to have a surgeon who has been so awesome and I’m glad that he told me honestly that he doesn’t recommend surgery for me right now. If he left it up to me, I probably would have been going back and forth on what I wanted to do.

I’m totally excited to not need to have surgery. This surgery would have been major surgery and there are always risks when you have any surgery. And this one would have had more risks than any other surgery I’ve had before because of potential blood loss and other complications. And I was not looking forward to recovering and not being able to do everything that I’m used to doing.

But at the same time, I do feel a bit weird that I’m not getting rid of these tumors. I’ve been focusing on how glad I will be to have them out of my body that the idea that they are staying is a bit odd. I’m sure that a lot of it is just shock right now and I still can’t believe that I am lucky enough to have my tumors shrink without medical intervention. Soon enough I bet I’ll just be happy that I didn’t have to disrupt my life with a major surgery and the idea of keeping the tumors in me won’t be as weird. I also feel like I was overreacting before with getting ready for surgery, but honestly there is no way we could have known this would happen to me. If my surgeon has never seen this happen before, why would I ever expect it to happen to me?

This is seriously a miracle and I just want to thank everyone who has sent positive and healing thoughts my way or who have kept me in their prayers. I don’t know how this happened to me, but I’m so grateful that for now I don’t need to have surgery next week. My parents will still be coming to town, but now we get to spend a couple of days having fun instead of them having to be here to take care of me while I’m recovering. They don’t come to LA that often and when they do it’s usually for a super short time. So I’m pretty excited to get to spend almost a week with them in LA!

If anything changes or if something doesn’t feel right, there might be a tumor update within the next few months. But if everything keeps going the way they have been going, I won’t have anything to blog about regarding my tumor until my next MRI in the fall. It’s crazy how quickly this chapter of my tumor journey is closing, but I guess since it started in such dramatic fashion that it’s fitting it is ending the same way!

MRI Time (or I Think Being Calm Is Helping)

I had what should be my last pre-surgery MRI this week. I needed this MRI so that we could see if any of my tumors have shrunk in the past few months. If they have shrunk, that will help me keep more of my liver during the surgery. It’s ok if they have to take some out since it does regenerate. But it would be nice to need less of my liver to regenerate because the tumors are smaller.

I previously had a monthly challenge to work on visualization to help my tumors shrink. I won’t know if this worked until I see my surgeon for my pre-op day, but I’m feeling happy with the work that I had done. I don’t feel like there is anything else I could have to help them shrink. And if they don’t shrink, that’s ok too because it wasn’t a guarantee they would get smaller after I stopped hormonal birth control. I’m prepared for anything when I see the MRI results.

Before a year ago, I had only had 1 MRI in the past and that was for my hip. But since then I’ve had 1 breast MRI and 2 liver MRIs before this most recent one. So this one was my 4th MRI in under a year. And all of those MRIs involve contrast which means I had to have an IV put in (which isn’t fun since I still don’t do well with needles). And while I’m not super claustrophobic, being inside the MRI tube isn’t fun and it can feel like the sides of the tube are closing in on me. I’m lucky because my head is toward the outside of the tube so I can tilt my head back and see a bit of the room behind me, but it can still feel very closed in.

For the MRI this week, I was feeling a bit stressed about it. Some of the stress was unnecessary (like feeling guilty that this was during work time but I had already banked the hours to cover it) but I also know that I’ve done well in past MRIs and just wanted to make sure that I would be the same this time. I’m always worried that for some reason things will be different this time (I’m like that with the dentist) and I just wanted to have a smooth MRI day.

Things started off rough with me getting there 4o minutes early because I had put it in my calendar at the wrong time, but I figured that is better than being late. And when I checked in, they let me know that they were running 30 minutes behind so I was worried I wouldn’t be home to start work when I told my manager I would be. But somehow, they ended up getting back on time quickly and I was brought back to the MRI area only 5 minutes after my appointment time.

I feel like a pro at MRIs now. I know not to wear things with metal on it so all I had to take off when I was going in was my sweatshirt and my shoes (the tech there was impressed that I wore a sports bra with no metal clasps and knew to do so). I got onto the table and the techs got everything set up with the various pillows to have me in the right position for the MRI. And then I got my IV in (I had warned them that I pass out but I came back very quickly and it wasn’t too bad) and got into the MRI tube.

Since this was my 3rd abdominal MRI, I knew that I would hear prompts to hold my breath at various times. The first time I had to do this, I wasn’t really prepared and since I was nervous it was tough for me to hold my breath when I needed to. This time, I focused on taking steady deep breaths when I didn’t have to worry about holding my breath. When I had to hold my breath, I tried to count in my head to distract myself. And I tried to zone out while the machine was going since it is so loud and can make it seem more claustrophobic for me somehow.

I have to say that this MRI was the easiest one that I’ve done. It does help that I knew what to prepare for, but I could have said that for my second liver MRI and that one still wasn’t as easy as this one was. When it was done, I was actually very surprised it was over. I thought that maybe we were only halfway through or something. But it had gone really easily and I never felt too panicky or anxious while in the MRI tube. The worst part was when the dye went in my IV, but it was not bad at all and more just a weird sensation in my arm.

I really wished I could have looked at the computer to look at my tumors. I know I couldn’t read it properly, but I am curious what things look like now. I did get a little glance at one image from my MRI where you could see the 2 smaller tumors. But since I’m more familiar with the big tumor, I can’t tell too much from looking at the image of the other ones.

In about a week, I meet with the surgeon to go over all of this and to do what should be the final pre-op step. I’m a bit anxious to hear what he will say, but I know whatever he says that things will be ok. I’m going to continue to focus on being calm and taking deep breaths since that worked so well for me in the MRI. I never expected that test to go as smoothly as it did so clearly this plan is working for me. Hopefully it works for me while in pre-op appointments, surgery, and recovery too!

Surgery Shopping (or How To Prep For The Unexpected)

I know I’ve posted a lot about my liver surgery lately (and I will be posting more about it over the next few weeks). I’m now 2 weeks away from surgery and there is so much that I’ve been trying to get done or need to do. I’m still trying to have a lot of fun, but surgery stuff is taking up a lot of my time.

I have the stuff I expected like various doctor appointments and tests. I’ve already done some blood work and today is my MRI. I’ve got my official pre-op appointment next week and that will consist of multiple doctor appointments at one time so I can meet with the surgeon, the anesthesia team, and possibly the inpatient team. I’ve also been working more than normal because I’m banking hours at work. I can’t afford to take time off (I don’t get paid time off at any of my jobs), so I’ve been working extra hours unpaid to cover the time I won’t be working coming up. I’ve got all the hours banked that I think I’ll need, but that has taken a lot of time in the mornings that I usually do other work.

I’ve also been trying to get things ready to be in the hospital for a while. I’ve been getting ideas of things to have with me from friends who have been in the hospital for a while before. I’m hoping the hospital has decent wifi because I have a feeling I’ll be watching a lot of Netflix or Hulu there (also, if I feel up for it then I could even work from the hospital). I’ve also gotten some dresses that are easy to put on and are cheap to wear after surgery. There’s a chance that things with waistbands won’t work for a little bit for me so dresses seemed to be the easiest solution. I also know I might have surgical drains when I go home, so I found these awesome sticky pockets to put in my clothes if I need them.

I still have a pretty decent list of things I still need to get for my time in the hospital and while I’m recovering with my parents. Some things I expected to be easy, like getting some slippers to have with me, but somehow they haven’t been easy to find in stores. I’m guessing I’ll be doing a big Amazon order soon. I might wait until after my pre-op appointment so I know what else I might need. Thank goodness for fast shipping with Amazon Prime! I’ve been told I might get a list when I go in for the pre-op appointment, but if any of you have been through any type of abdominal surgery and have suggestions for things I should have please let me know!

And then of course there is getting my house ready for this all. I will be doing some big cleaning because I don’t want things cluttered when my parents are here and I don’t want things to feel dirty when I am back home. After I’m out of the hospital, I will be recovering with my parents so they can help me out with things or buy things I forgot about. But I still want to try to get as much done now as I can. One thing I was trying to do but have been slacking on is getting some food made and frozen so it’s easy for me to eat at home even if I’m tired. I don’t want to go back to ordering delivery food (plus I’m guessing I’ll be on a restricted diet so I want to have food that I made and know what’s in it).

I know it sounds like I’ve got a handle on things and seem really prepared, but I don’t feel that way at all. There are still so many unknowns with this entire thing and a lot of the answers won’t be things I can really know in advance. I have no idea how my body will react to this all and I can’t prepare for what I don’t know will happen. It has been giving me a pretty steady level of anxiety lately, but nothing as bad as a regular panic attack. And I have had a few minor attacks but fortunately my friends and family have been able to calm me down.

When things were 2 months away or even 1 month away it seemed like I had unlimited time to get ready and that it wasn’t going to be soon. I think it really hit me when I had 3 weeks left how soon this was all going to be. I’m very lucky that I’ve had time to prep for this and it wasn’t an emergency surgery where nothing could be done ahead of time. But sometimes having prep time is the worst because I can analyze things to death. I’m trying to stay as calm as I can be which is why I set my monthly challenge to be being calm and taking more deep breaths.

Over the next 2 weeks, there will be posts about preparing for surgery but I will also have some fun posts in there too. And I am hoping to keep this blog going regularly while I’m recovering, but of course I don’t know how I’ll feel. But I do promise that if there are some days I can’t blog I will get back to writing regularly. I’ve been doing this every weekday for so long, and the idea that I might miss a day does stress me out a bit. But I hope that you all will stick with me while I get through all of this and hopefully I can find some fun things to write about while I’m recovering!

A Challenge For A Weird Month (or French And Deep Breaths)

Another month brings another monthly challenge! It’s crazy to think that it’s a quarter of the way through this year already. It seems like it’s been flying by so far and that March went by so much faster than I ever expected!

My monthly challenge for March was to work on learning French every day. I was using the app Duolingo which I had tried to use before and just couldn’t get into. But I decided that I was going to go all out for the month with trying to learn French and if I hated it that I wouldn’t force myself to continue doing it. I did 2 lessons each day (each lesson took less than 5 minutes) and I really did make an effort to take it seriously and work hard at it.

It wasn’t easy to learn French just through the app (that might have been my problem the first time), but I was able to get through the entire month and have continued to work on it each day. I do go back and review past lessons often and the way the app is set up they do have words that seem to be the toughest for you in each lesson to work on. Some of the stuff is hard to understand because I don’t know why things are one way versus another or the different way to use various verbs. But I am understanding much more French than ever before and I am looking into other ways to work on learning the language. Overall, I think it’s another very successful monthly challenge.

When it came to planning what my challenge for April would be, I struggled with it for a while. There are several things I would love to use as a monthly challenge, but with surgery and the recovery coming up I knew there would be a good chance I wouldn’t be able to do it each day of the month. I don’t want to set myself up for failure when I know that it might be impossible for me to do something while in the hospital or while I am restricted in what I can do.

I probably thought about this for almost all of March, but I finally thought of what I could do every single day in April that would benefit me even though it is an easy challenge.

This month is going to be a stressful month and I don’t need to do anything that will add more stress in my day-to-day life. Taking deep breaths is something I don’t do that often but when I do focus on it I notice a benefit in my day. Taking time to take some deep breaths allows me to take a moment to just focus on that and not what else is going on around me. It allows me to center myself again and then get back on track with whatever I need to be doing.

There will be a lot of things that will be benefitted by deep breaths. I’ve got my MRI coming up this week and dealing with the IV needle is always tough on me. And the time inside of the MRI machine is very stressful and I know that if I use that hour inside the machine focusing on my breathing that I won’t be thinking about how small the MRI tube is or how loud the noises are. And after my surgery I’m sure I’ll have moments of pretty bad pain and taking deep breaths can give me something else to focus on instead of waiting for painkillers to start working.

I know this is a simple monthly challenge, but I’m taking it as seriously as I have with any of the past challenges. I am taking time each day to work on deep breathing and just a few days into this month I’ve already noticed a difference. And I think knowing that I have a challenge this month that will be able to be accomplished before surgery, after surgery, and while I’m recovering has made me relax a bit because I won’t be worried about trying to get something else new done while dealing with recovery. I am hoping that I will be able to continue with all of my monthly challenges while recovering, but I also know that I have to be lenient and forgiving with myself if I can’t do it. All I can do is to stay calm, take deep breaths, and focus on being the best me possible through this entire crazy month.

Not What I Want To Weigh (or About A Month To Go)

As soon as I knew I’d need liver surgery, the first thing I thought about was wanting to lose weight before surgery. I know that at a lower weight the surgery will be easier and I’ll have a smoother recovery. Needing to be at a lower weight for surgery is why 11 years ago I did the RFO diet at UCLA. It was more important then because I was having joint surgery, but it is just as important now.

When I got sick, I dropped weight super fast. It was almost scary how fast it was going down and for a while I thought that trend would stick. In a matter of a week or so, I was down over 20 pounds. And even when I started to add more normal food into my diet, my weight seemed to be steady. I wasn’t necessarily losing weight, but I wasn’t gaining it either which I was expecting. And for a while, that was how it was and I thought it would be.

With the idea of surgery coming up, I had a number in mind that I wanted to get to in my weight loss. At the rate I had been losing weight, it was going to be a super easy goal. At the weight I was at, if I was losing 1-2 pounds a week it was a very possible goal. So I had no reason to expect that it would be an issue to get to the number I wanted to be at by April.

Now that I’m just over a month away from surgery, I’m not close to that number at all. In fact, I’ve gained a bit of weight back from that big weight loss back in the fall. It’s not a lot of the weight (only about 6 pounds), but it’s still so frustrating. I’m so mad at myself because I know this is my fault and that I have only made things more difficult on me and the surgery. I had no reason why this had to happen, but of course my eating disorder had other things in mind.

At this point, the number I had in mind is pretty much impossible unless I take unhealthy measures to lose weight. I will not do unhealthy things because I know they will backfire on me and I’m not willing to do that to myself. I can only try to do my best to get back on track and to be at the lowest weight I can safely get down to by surgery.

I’m trying to be hopefully that I can get closer to the number I had in mind than I am right now over the next few weeks. Realistically, I think the most I could safely lose would be 15 pounds. But I think that will be a stretch and difficult. I am doing what I can to keep my eating under control, but sometimes it feels like my food is the only thing that I can control in my life. And when I can control it how I want it to be, it’s not always the best choices. I’m trying to keep my health in my mind first over my eating disorder’s desires, but I don’t always win.

I’m lucky that my surgeon did not put pressure on me to lose weight before surgery. I know that I need to do it, but I don’t feel like he is expecting me to do so. Any weight loss I have will be a good thing and there is no feeling that I might be disappointing him with whatever the number will be on the scale when I weigh in before the surgery. I think if I had that pressure on me, I would be resorting more to unhealthy things and would probably still not lose as much as I should before surgery.

I really do want to buckle down and refocus for these next 5 weeks. I know that I can accomplish some really great things with my weight loss even if I do have the occasional setback. I don’t want to keep thinking of new goals to get to by surgery because I know that will be setting myself up to fail. Instead, I just want to make sure that whatever effort I am able to do that I feel good about it and know that I worked really hard to get to where I am.

I’m hopeful that I will probably have a decent weight loss after surgery because I’ll be on a restricted diet for a while. I don’t want to depend on that for weight loss because I know that it can be temporary. But it will be a nice time that I know the scale should be going in the right direction that will allow me to refocus my plan and to hopefully continue the momentum after I start to eat normal food again.

It’s so frustrating when I was doing so great for a while and then something happens that makes me feel like I’ve ruined all of my progress. I know that recognizing that I’m struggling is a sign that things are getting better because I am not allowing myself to ignore the fact that everything isn’t ok. I just wish that things were easier for me because I really do want to not have to worry about food like I am now. I want food thoughts to not dominate my mind. And I want my efforts to show physically instead of being hidden by the occasional destruction of my eating disorder.

I’ve Got A Surgery Date (or Almost The 2 Month Countdown)

When I found out I needed liver surgery, I knew I would be waiting a little bit before having surgery. First, I want my parents to come take care of me when I have surgery and waiting until at least April was best for their schedules (this isn’t an urgent surgery so there is no rush for them to get here). Also, waiting does give my body a bit of time to hopefully shrink the tumors. And finally, I am hoping to lose a bit more weight before having surgery.

I had things set on being the middle to the end of April (I have a 5K in the beginning of April that I don’t want to miss), but when I saw my surgeon the last time the April schedule wasn’t open yet. So I was waiting on the surgery schedule to have April up so that my surgeon could pick the best day for it. He knew that I was looking at the week after Easter and had my permission to just give me whatever date he could that week as soon as the schedule was up. My surgery is possibly going to be an all day thing, so I might be the only patient he operates on that day.

I had been waiting and waiting for the schedule to open up and finally at the end of last week I got a phone call from the surgery scheduling assistant. My surgery has been booked and I’ve got just over 2 months to go before the tumor (or tumors) will be out!

Even though I’ve known about this for a while, having an actual surgery date makes everything seem real now. I have almost all my doctor appointments leading up to surgery booked (I just need to have my final MRI scheduled) and I know the timeline of when everything will be happening. I’ve let my agents know I will be unable to audition or work then and I’ve figured out exactly how much longer I have to bank hours at my box office job. I’m hoping I can still work while I’m recovering, especially in the hospital when I’m scared I’ll be bored, but I am banking enough hours to cover me if I cannot work the week and a half I’ll be recovering with my parents.

During my pre-op appointments, I know that someone will go over with me some of the things I’ll need to bring with me for surgery and my hospital stay. I’ve never had inpatient surgery before, so I am a bit nervous about staying at the hospital. I’m a bit set in my ways and in my routine, and I know this will throw me off. I’m looking online at things that people recommend to have for overnight hospital stays or abdominal surgery recovery. If any of you have been through either, I would love some suggestions.

This have been moving pretty quickly after I got my surgery date. I have several appointments scheduled now, my parents have planned their trip down here, they have found a place to stay, and I’ve got a ticking clock in my head of how much longer I have. I’m sure that since I’ve got about 2 months to go that soon I won’t think about it as each day counts down. Eventually I’ll just have it in the back of my mind instead of the front of my mind.

The only downside with having some time to get ready is that I have time to get ready. I have the time think about what I want to do before surgery or to have with me in the hospital. I have time to do a lot of research and read the good recovery stories along with the bad ones. I have time to think about what this will mean for the rest of my life. Since they are taking out my gallbladder, my diet will need to change a bit. And for the time that my liver regenerates, I’m sure I’ll have a restricted diet too. And after surgery, I will have scars on my stomach for the rest of my life. The scars on my hip have faded to the point you can’t see them anymore, so maybe the ones on my stomach will do the same. But I will always know that they will be there.

I’m going to try to limit the number of posts I do about the upcoming surgery. I’ll do posts when I have updates or appointments so you all know what is happening with me. But this surgery is just a minor roadblock in my life. Once I get through it, things will be different but I will be fine. This is just another crazy story that I will be able to tell one day at a party (I’m sure saying I had a tumor the size of a baby’s head taken out of my liver will be a good cocktail party story one day).

I’ve got about 2 months to go before this is all pretty much behind me and I can just focus on recovering from surgery, getting back to my normal life, and moving forward.

My First 2017 Monthly Challenge (or Working On My Tumors)

It’s a new year and I’ve got a new year of monthly challenges! I did buy the Volt Planner for 2017 and I’m very happy that it’s a similar set up to what the 2016 planner was like. There are still the weekly and monthly goal setting pages as well as the monthly challenges. And I plan on doing a new monthly challenge each month just like I did last year!

I think that having the goals and challenges really did help to keep me accountable and focused on doing things to better myself. It’s one thing to say that I’ll be doing something, but to have a list in a planner where I can see what I set out to do is another. Having it on paper makes me want to make sure I don’t slack because I hate to see unchecked boxes on my goals and challenges pages in the planner. It’s the perfectionist in me that makes me want to get something done if I write it down in a planner.

I’ll admit that January 1st got here much quicker than expected so I didn’t have as much time dedicated to planning out my challenge for the month as I would have liked. There are some big ideas for challenges that I have for this year, but some of them involve planning or setting things in place that I didn’t have time to do for this month. Hopefully I’ll be able to do some of my big ideas later this year, but it will have to wait. But there was one thing that I started doing at the end of the year that I knew I wanted to continue to do this year and dedicate time to working on it.

While I know that I will need to have liver surgery no matter what, there are things that I can do to hope that the surgery and recovery will be easier. And one of those things is to have the tumors shrink. There is no medical way that I can do this (they aren’t cancerous tumors so I don’t need chemo or radiation to shrink them), but I can still work on doing it on my own. I’m a believer in the power of positive thinking and I’ve been trying to think that my tumors are shrinking every day.

My mom did the same thing when she had cancer, and her journey to being cancer free went much easier than most people thought it would be. She imagined her body healing every single night and I believe that doing that helped her so much. So I’m doing the same with my tumors. I had been doing this before the new year, but I still decided to make it my monthly challenge to make sure that I do this every day.

Like most of my challenges, I’m using the reminder app on my phone to alert myself every day to dedicate time to doing this. I’m not using my mediation app for this, but I’m thinking about doing that because there is a silent timed mediation option within the app. But for now, I’m just focusing on how I imagine the tumors getting smaller for a few minutes every single day.

It’s not a huge thing for me to do, but I know that doing it will only benefit me in the long run. And making sure that I do dedicate time every day for this will help me not to slack off and forget. I really do love having all the reminders in my phone going off throughout the day so I don’t zone out and then realize the entire day has gone by without me getting anything done. I feel silly that I hadn’t been taking advantage of those prior to the monthly challenges because they are so easy to set up. But at least now I have them and I am always adding more to my reminder list.

While this challenge is a smaller one, I’m really excited to have another full year of these challenges. From the ones that I set up last year, most of them are still things that I do every single day. I have slacked off on a few (mainly the yoga and mindfulness before eating ones but I’m working on that), but most of them have become habits and my day doesn’t feel complete until I accomplish them. And I know that building a few new good habits every year will add up and be something really great for me for the rest of my life.

Here’s to another year of monthly challenges and hopefully using my mind to get my tumors to shrink before my next MRI and we make my surgery plan!