1 year ago today I was supposed to have my liver surgery to remove my tumors and about 30% of my liver. And as you know if you’ve followed my blog for a while, that surgery didn’t happen. Even though the research shows that the type of tumors I have don’t typically shrink on their own, somehow mine did. The tumors were caused by hormonal birth control and I guess going off of it made the tumors smaller. I’ve done some research on my own and it seems like even though this situation is still very rare, it is a bit more common than we previously thought.
For my hip surgery, it’s easy to know what the anniversary is because it happened on a certain date. For this medical situation, it was a bit tougher to pick what my anniversary date would be. There was the date when my OB/GYN called me to tell me my MRI results were in and the tumors shrank. At that time I only knew the tumors shrank and that it was almost unheard of that happening. She didn’t know what was the next step and I assumed I might still be having surgery. Then there was the phone call I had with my liver surgeon that happened 2 days before I was supposed to go in for my pre-op appointment. That was when my surgery was officially cancelled and I knew that I was a medical miracle.
But to me, I think I want to consider my non-surgery date as my medical miracle anniversary since it is the anniversary of my surgery not happening. It’s also an easier date to remember because I have to look back at a calendar to figure out what dates I got the phone calls from the doctors. And the surgery date was ingrained in my head while I prepped for it so it will be hard for me to forget it. So that mean today marks my 1 year anniversary of being a medical miracle.
It’s weird to think that 1 year ago I would have either still been in surgery or in a recovery room recovering from a major surgery. While I was looking forward to the surgery because I knew that I needed it, I’m much happier that I didn’t have to deal with a very long recovery from a major surgery. While I’ve had a few surgeries in my life, this would have been the biggest one and the first time I would have been in the hospital overnight (I would have been there for multiple days and nights to recover before going home).
When my surgery was initially cancelled, I did have a bit of a struggle because it felt like something in my life was unfinished. I also felt a bit out of control and disconnected because I had no sense that this was happening with my body (both the tumors existing and the tumors shrinking). It took a while for that feeling to go away, but now I’m just so grateful that I was lucky enough to not need a major surgery. As much as I prepared for that recovery, I know that there really isn’t a way to prepare and I was worried about how painful it might be and what my body may not be able to do for a while. I’m glad I didn’t have to have those worries but instead just got to enjoy a long visit with my parents instead of being in the hospital.
Since my medical miracle, there has been very little I’ve had to do with my liver. I am still limiting my drinking since I know alcohol can stress my liver (and I doubt stress is good for it). I’m taking some supplements for liver health because I figured it can’t hurt to do that and it’s not expensive to take them. And while I don’t have to worry about the tumor breaking off and causing me to bleed internally as much as I did before, I’m continuing to be cautious of not bumping my stomach into anything and avoiding any trauma I can to my abdomen.
I had an MRI 6 months after the miracle because my surgeon had no idea what really would happen with the tumors. The hope was that they would continue to shrink, but there was the possibility that they would either stay the same or grow and that would have led to me needing surgery. Fortunately, they did shrink a bit more (but not nearly as significantly as they did previously) and my surgeon and I went over what the plan would be. The plan is pretty limited as this is not the normal path, but basically I’m just continuing doing what I’m doing and then I’ll have another MRI in October (1 year from the most recent MRI).
Even a year later, I still think I’m a bit shocked about how this all turned out. Discovering I had a tumor was pretty dramatic with a full day at the hospital. Discovering what type of tumor I had and how large they were was pretty crazy too. And then being a medical miracle and having my surgery cancelled is something I never believed could happen. Even though my family always believes in the best for medical situations, my tumors shrinking to the point of my surgery being unnecessary didn’t really enter any of our minds. Hopefully the dramatics with these tumors is done now and my next MRI and all future ones will show the tumors shrinking. I guess I’ll find out in 6 more months.
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3 Years Knowing About The Tumors (or I Forgot An Anniversary)
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A Non-Surgery Anniversary (or Another Year Of Being A Medical Miracle)
3 Years Of Being A Medical Miracle (or Just Enjoying Being Healthy)
Taking Back A Medical Miracle (or Getting My Eyes Checked Again)
A Tumor Miracle (or I Wasn’t Expecting This)
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